Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
You need a cardio guy and an EP that will listen to you. Read what the rest of us have done and gone through and hopefully this will help you with your journay.
Best of luck, and afib is not a fatal disease, just a very very annoying and frustrating one.
Dee
I would say, try to read in advance so that you understand afib. Probably more questions will be regarding the treatment that is recommended than afib itself. You might want to ask your CHADS score which rates how complex your case is. I would also ask if he will take emails; my second opinion EP did, and it was another reason I liked him better, because I had tons of Q's after the visit, and he answered them promptly and courteously by email.
Good luck!
I just had my third ablaltion this week. Why are you opposed to it? It might cure you. I can tell you .... there was a point where mine was very innocuos and infrequent, so I was willing to live with it. But, it progressed to an intolerable frequency landing me in the ER for cardioversion every week!
I had to make a decision. Anti-Arrhythmic drugs are hard on the body .... and efficacy is a crapshoot. I was forced to make a decision. I went with Ablations. The doctor told my wife he thinks he may have cured it. Only time will tell.
Good Luck with whatever direction you take.
I have been told by a nurse at the hospital where I am slated to have an ablation that it will not free me of afib, it will only stop the symptons for awhile? Now reading your comments I see that an ablation can in fact cure afib.
Moysra.
They will want to know if you are symptomatic or asymptomatic. that will drive their treatment decisions. they can only try 3 things:
Control the arrythmia (afib or flutter) (drugs or procedure)
Control your heart rate (drugs)
Give you blood thinners (drugs)
Operations, cardioversions, and ablations have limited success (based on the length of time you have had afib and whether it is chronic or not), some risks, and the possibility of returning (particularly if you haven't addressed what is causing it).
It is easy for the doctor to say "we don't know" what is causing your afib. You should be getting blood tests and heart tests to determine the cause.
Once you have afib, unless it is from some short term identifiable cause like thyrouid problems or a heart operation, you are "tagged" with afib for life. It is like getting the joker in a card game. Even if you are "cured" it can come back. Afib was once considered only a nuisance and medicine is just putting alot of effort into cures.
I've heard of few sucessful ablations. Hopfully some day they will get better at killing the nerves that cause the afib. I have read that the cyro has an up to 95 % sucess rate. Don't know if I believe that. It would have to be proven to me.
Dee
I focused on the 'cure' aspect intently with my EP. He said, 'I have plenty of patients who are AFIB free for many years.'
Talk among medical personnel is that it often takes more than one ablation to be cured ..... My EP said his cure rate is 73% for one ablation.
If you are not outright cured ... an ablation often makes the condition more tolerable. Medicines work better .... AFIB episodes are fewer ..... when you do get them, they might resolve themselves (where they did not before) and the AFIB might not last as long.
Insurance companies are paying for the procedure. They don't pay for procedures that are ineffective. They're conservative .....
Good Luck to you!
Moysra.
I am in persistent asymptomatic afib, so my only success is real cure. I feel good and I have no other issues. To "cure" persistent afib, the only 2 methods are step procedures and something called 5 Box. If it works on persistent, it probably is a real cure for paroxsymal afib. But it is more invasive than ablation. The next consideration is risk. With proper "staging", risk is minimized. Staging is determining candidates that are healthy enough to have good success and little chance for adverse outcomes (don't make me explain that phrase :-) ). Finally, selection of the correct facility, doctor, and technique for your situation (there are like 20 separate factors that should be considered) is paramount. That's your job to figure out with our help.
Moysra.