Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
Cardiofocus Laser Balloon Ablation
tcaepayguy
As some of you might remember from my past postings, I was lucky enough to get enrolled in the Cardiofocus Laser Balloon Ablation study conducted by Dr. Hugh Calkins at Johns Hopkins. 2 January 2013 I had my ablation, and today I had my 12 month follow up. First let me just say that I have determined that before my next visit, I MUST ask Petey to come with me, cuz I seemed to forget the 100 questions that I intended to ask when I went into the meeting. Sad part is, this time I even wrote all the questions down! But you get in, start chatting...oh well. My personal news is that I am considered a roaring success. No afib for one year..NONE. Right after the ablation I had accelerated heart rates, some up to 155 BPM, but none were afib. I had them longer than I should have, due to the fact that Mom got sick in May and I spent several months with her in the hospital. So I failed to get back into the proper exercise regimen, and my resting HR was actually CLIMBING instead of going down. At one point it got up to 85 resting, and would shoot up with any sort of exertion. In a way it was lucky that I got the Metabolic Syndrome diagnosis in August, as this forced me to start back into exercise on a regular basis. Dr. Calkins told me to continue exercising to deal with the Syndrome, and if I did, it shouldn't adversely affect the ablation (he has previously published that obesity DOES adversely affect the success rate). Some bad news. Like a few others I have seen on posts in this and the stopafib site, post ablation I and others have had gastrointestinal distress. Dr. Calkins indicated that sometimes the nerves along the esophagus can be injured during an ablation, and gas and bloating can result. So, something else to consider before deciding upon ablation. I brought this up, as well as the fact that I continue to have "extra" beats, which freak me out a bit. He indicated that this is normal. Sometimes these go away, other times they remain. He indicated that my heart was still in repair mode (REALLY? A year after? So much for the 3 month blanking period!). This period a varies according to the general health of the patient. I have seen some posts where these beats stopped for people after taking magnesium or other supplements. I haven't been so lucky. I will continue to work out and hope for the best. The Cardiofocus study had 450 participants, and is now over. The official results will be published at the end of 2014 or early 2015, but Dr. Calkins indicated that the study was "highly successful."
FIRM - I told Dr. Calkins that many on this board where holding out hope that FIRM would be the answer. While he would not say anything officially about this, he seemed to indicate that the problem with this is that only a few EPs outside of Dr.Narayan are replicating his good results (he of course called him Sanjiv...small EP community). So Eric, if you are going for FIRM, you may as well go to this guy for the procedure, as he is THE best at it! Dr. Calkins seemed more enthusiastic about the Bordeaux Group advances, particularly the work of Dr. Haissaguerre (No follow up question from me, sorry).. This of course could be because he used the laser balloon on me, which is the technology they have been using in France for years with great success. I really wanted to ask him about John's post, with regard to the 90% success rates after 10 years...but forgot. I am sorry that I couldn't pass along more information...So, one year down. I sill need to lose about 20 pounds, and continue with the exercise program, but I count my blessings that I was able to get into this study, and that I was able to get one of the "rock star EPs," the brilliant Dr. Hugh Calkins.
Bill
FIRM - I told Dr. Calkins that many on this board where holding out hope that FIRM would be the answer. While he would not say anything officially about this, he seemed to indicate that the problem with this is that only a few EPs outside of Dr.Narayan are replicating his good results (he of course called him Sanjiv...small EP community). So Eric, if you are going for FIRM, you may as well go to this guy for the procedure, as he is THE best at it! Dr. Calkins seemed more enthusiastic about the Bordeaux Group advances, particularly the work of Dr. Haissaguerre (No follow up question from me, sorry).. This of course could be because he used the laser balloon on me, which is the technology they have been using in France for years with great success. I really wanted to ask him about John's post, with regard to the 90% success rates after 10 years...but forgot. I am sorry that I couldn't pass along more information...So, one year down. I sill need to lose about 20 pounds, and continue with the exercise program, but I count my blessings that I was able to get into this study, and that I was able to get one of the "rock star EPs," the brilliant Dr. Hugh Calkins.
Bill
Absolutely correct...it was definitely weird seeing him the very first time in person. Sounds like I had the exact same experience as you. I didn't go to the Cleveland Clinic, but I had done some research and contacted them a few months after onset and they said "Whoa dude! Try drugs first and see how you do." And Dr. Calkins said the same thing...don't jump into anything. But when I told him I really wanted to do this to continue my military career, he asked if I would be interested in the study. So I jumped at the chance. I think it is amazing that people do get used to being in afib. I just wasn't mentally tough enough for that. Each of us has a path to follow, that is for sure. Hopefully in a few years this just won't be a big deal. In, out, no afib. Sounds like that is the case this past year with Dr. Natale's patients! Between this site and stopafib, there is nothing but good stuff. Must be an amazing, brilliant guy.
Thanks Carrie. Seems like the progress with the exercise is tougher as you age. Before afib I wasn't a stud, but could do an hour on the elliptical no problem. Now it is like "Whew! Was that really 20 minutes?" But Dr. Calkins nurse told me that I messed up doing nothing for 6 months, and that it would be tough getting back into shape. Gotta stick with it!
Bill
Thanks for sharing the info from Dr. Caulkin. Now, I know the digestion problem that I have had for the past month after the ablation is due to the ablation and more than likely nothing serious.
I was getting really worried since this is the first time that I have problem with slight pain, bloating, and some heartburn after eating oily foods like peanut butter and alike. I was wondering if it had anything to do with my ablation. I did not think so. But, based on what you are saying, ablation might have caused it, ouch, not cool at all :-)
Also, I see you are playing the "getting old" card again, LOL. Man, you are still a DUDE and STUD :-) You just have to start getting back to exercising slowly. You will build up your strength again.
I feel very much out of shape now since I have NOT done anything since my ablation one month ago because of my leg pain due to hematoma. In addition, for the past 10 months I could not do much because I was in persistent afib and I would get out of breath quickly doing anything. So, I have a long road in front of me to get back in shape for some serious hiking in the Glacier Park or Alaska. Got to be able to run away from those BEARS :-) Just kidding, that would be the wrong thing to do. We always carry a bear spray, works better than any gun according to experts. In Alaska, almost everybody carry a gun or riffle on the trails. They make my wife very nervous specially when I start talking to them and disagree with some of them politically, LOL. Alaska is petey country :-)
Thanks again for the info. I am really glad that everything has worked for you. That is great.
Have a nice weekend,
Scott
Yeah, I NEVER had any issues with eating before...this can be quite uncomfortable. And I saw from others' posts who had had ablations that this could be an issue. It was suggested that it could have been the metabolic syndrome, but it started within a month of the ablation, so that seemed like the obvious connection. Now it seems to have been confirmed. Dr. Calkins said that it CAN be serious (he mentioned a case where someone's stomach "seized up"), but generally it is something that heals. Doesn't happen after every meal, just when I really eat too much. So another reason NOT to return to my old eating habits. And of course the Hopkins protocol to resolve digestion issues is EXERCISE. Damn, is that the cure all for EVERYTHING? If you saw some of my earlier posts you know that getting back to exercise in a timely manner after ablation is very important...of course, I think having your leg blow up probably qualifies as a good excuse to hold off for a while! LOL! But if it has been a year since any serious exercise you may be in the same boat as I am, where it will take a while to get back into shape. But we will get there! Now, I need to mosey back upstairs and watch ENLISTED. These guys are definitely 1970s era soldiers...I actually asked some of my old Army buddies if they were writing it! Lots of fat guys, beer swilling, and dope smoking in that 1970s Army..although they don't show the dope smoking in this show.
Bill
resuming exercise after the ablation has been hard for me, but definitely worthwhile. I had serious stomach gas bloating problems before the ablation, they are much better now, but still present to some extent.
Glad to hear that you had NO afib for the year post ablation. Keep us informed.
ecofr