Asperger Syndrome Support Group
Asperger syndrome - also referred to as Asperger's syndrome, Asperger's, Aspergers or just AS - is one of five neurobiological pervasive developmental disorders (PDD), and is characterized by deficiencies in social and communication skills, normal to above normal intelligence, and standard language development.
Heidiclark
As a mom of a 13 year old aspie I find that I struggle to accept my son for who he is and to accept his limits. I think I get caught up with the feeling that it's not okay for him to just be who he is and that I need to do something about the Asperger's. Well, the other day I realized that I spend so much time and energy thinking about how I can help him that I end up neglecting myself and my own needs. So I'm trying to focus less on Josh and let him be who he is and not blame myself for his issues; and also focus more on myself and on what I need and want out of life. Does anyone else struggle with this? Thanks for listening.
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It's not your fault the way he is.
All children are a struggle, he's a teenager and that usually isn't a fun time for anyone... and I've seen many normal kids go down the roads that break a parent's heart that an aspie is unlikely to go down.
all the best.
sometimes you just need to let them set the pace. there is a time and place for everything. as they get older, expectations have to change.
I have 4 children he is my second child and I have always treated him like my other children. But I also knew that it took him longer to learn something new and/or to change a bad habit. As I recall it took him several months of repetitive reminders for him to be able to learn something. It takes a lot of patients with children like this. I never got mad at him even though there were times I had to yell at him to get his attention. It just became a routine for me as well.
My son was never diagnosed with Asperger's Syndrome. I even took him to an Asperger's Specialist and in so many words he did say my son has Asperger's, but he would not make it official. I guess because my son does have (for the loss of a better word) "normal" traits that other people with server Asperger Syndromes have. This doctor did not want to put that title on my son.
My son will be 20 soon, going to college, living at home. He cannot work because when he does his grades will drop. The same thing happened when he was in High school and he tried to play sports.
My son time consists of household chores, playing on the computer and playing video games. I have learned to accept that he may never have any friends and I found out that most people with Asperger Syndrome are "ok" with that. For us it is not normal but for them it is. My struggles with him now are Life Administrative Skills. He struggles with making doctor's appointments for himself, calling "tech support" for his computer, going to the store and asking the clerk for assistance with finding something, filling out paperwork, etc. I still slowly have to teach him these things. I have to talk him through it every time, but if an unexpected scenario occurs; he immediately stops and if he is not home he will go home.
My son learns what some people would call "normal" behavior, but I also now that there is some behaviors my son has that are unique to him and I would never change that. He is who he is and I teach him what he needs to know to function in this world, the rest I don't worry about.
I use to think that too, but when I asked my son he told me "no". He just gets very frustrated with other people and how they interact with him.
There is one thing though...when he was 18, I had returned to the church. I encouraged him to go Adult church classes to understand the religion better and I think that was the best thing for him. He opened up more, the group (of young adults) accepted him the way he was and encouraged him to speech his opinion and participate in the class. He did enjoy the experience and still communicates with some people from that class, but I know that if it were something long term, he would not go. He does go to church every Sunday, by himself. He will go at a different time then us because the people from his class go at that time. He calls them friends but they are more of acquaintances, but that is the closest he has gone to have friends. I am not saying church is the answer, but maybe some kind of Youth function may help, but it would have to be at his own pace.
My sons share one friend, a young guy who's also on the spectrum. Most of the time, that and having each other around is plenty for them. They both have always preferred the company of intelligent adults - a very Aspie trait. They would both, however, like to have female company and be romantically involved, but they haven't had any success at that.
I went through counseling for stress and anxiety that originally I thought was work stress. It wasn't. It was in therapy that I found out how much I had been emotionally impacted by my sons' disabilities. It was a crucial realization as I was not taking care of myself, and the accumulated stress was taking its toll in other areas of my life. If you can speak with a therapist, I would heartily recommend you do so. As a parent, we go through a lot of self-blame for whatever suffering they have and guilt for not being able to "make it all better." The guilt can eat you alive.
As far as accepting my guys for who they are? It's a blessing to me in so many ways. As Acuriousfish has noted, there are things that "normal" kids do that they aren't interested in. I had friends who had sons the same ages as my sons. The classic example was one I had lunch with one day and asked her about her son. I meant the littlest one that was still at home (about 12), but she answered about all 3. "My eldest is in jail for carjacking. I refused to waste good money to get him a lawyer to get him off when I know he'll just do it again. The middle one is living with my ex-husband because his step-daddy caught him stealing from us again to sell things for drug money. He was homeless for awhile before his daddy took him in, but I wasn't going to have that kind of trouble in the house. The little one is doing great - he's going out for football this year!" So - yeah - I am grateful sometimes that my guys are NOT normal..... They don't do drugs or drink or run with a gang and neither of them is a "player" by any stretch of the imagination. And they are just way more interesting people than most I know. And there isn't a malicious bone in their bodies - they are genuinely nice guys.
It's a challenge to balance their needs and our own. All parenting is, but it's harder to know what kind of boundaries you have to have when they are on the spectrum. Some things are a piece of cake, and other things take a LOT of work.
Hope this helps.... Hugs...