Asperger Syndrome Support Group
Asperger syndrome - also referred to as Asperger's syndrome, Asperger's, Aspergers or just AS - is one of five neurobiological pervasive developmental disorders (PDD), and is characterized by deficiencies in social and communication skills, normal to above normal intelligence, and standard language development.
mary0475
Hi I am new. I do not have my papers yet, you know, the ones saying yay or nay. I need them. Right? I am 43, already established, and don't believe any of my children have this. Should I get diagnosed? I want to, my mom was, I believe, and my ''retarded'' brother who was sent off like some discarded.. yeah. This makes so much sense. I have not told anyone what I think. I have a husband and four children and other than to say'' I don't hate my mother anymore'' to my husband. as I believe she also , and therefor I understand her finally. Scared
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As an adult thosse reasons might be;
1. Self knowledge
2. As I say to people if you are going somewhere, first find out where you are. If you know you have asperger's and want to make life changes then you can look for therapists / counsellors with specific knowledge, read books written for people with asperger's etc. Or even ask advice here - all knowing that the responses will be "tuned" for Aspies.
3. Depending where you are a degree of employment protection.
But be prepared for some emotional turbulance even if you think you know what the result of the assessment will be.
4. to be able to explain to others why you are the way you are.
But be careful with that - with people close to you you can get flat out denial - "the doctor only saw you for an hour, I've known you for years"
or you might find that everything you do and are gets ascribed to the disorder - "you only don't want to do that because of your asperger's" or that people have an idea of what asperger's is and force a sterotypical template on you.
5) So your children will know what they may have to contend with if they have children (your grandkids).
Autism spectrum disorders are believed to have an inherited/genetic component. What this means is that if your children have children, particularly if they should marry and have kids with someone else whose family has a genetic thread of autism disorders, then there is a higher chance that your grandchild(ren) may be affected.
We believe my late husband was probably an undiagnosed Aspie, but there was no name for it back then, and no cases of full-blown autism on either side of the family but a lot of traits. Our first son is diagnosed with Asperger's, our second son is more severely affected and diagnosed as Autistic.
The knowledge is a two-edged sword. If I had known that there was a chance my kids would have these problems and suffer as they have suffered, I probably would have adopted instead of taking the risk. I am telling you that as one mother to another. I love my sons with all my heart, they are special in ways no other child could possibly be. But their road has not been easy, and it never will. Only you can decide if that would be important to you or to your children to know. I wish I had known, for their sakes.
I am sorry for what you and your brother have gone through.
Hugs.....
I think that's ultimately what it comes down to. There's pros and cons of being diangosed and then disclosing. You need to weigh those, and find out how it would affect your life.
Personally for yourself I would find out (you seem like you want to anyway), and see if you can find a therapist that matches your needs. Someone that matches your needs for everything in your life, asperger's related or not. Then you can work with them to answer the rest of your questions. Good luck!! Message me anytime.