Arthritis - Juvenile Support Group
Juvenile idiopathic arthritis (JIA), formerly known as juvenile rheumatoid arthritis (JRA), is the most common form of persistent arthritis in children. JIA is sometimes referred to as juvenile chronic arthritis (JCA), a term that is not precise as JIA does not encompass all forms of chronic childhood arthritis. Arthritis is the inflammation of the synovium (the lining...
I feel anxious that sometimes I could make the wrong decision on behalf of my child .I felt this awful wave of sadness today as when I took my daughter of 14 to the rheumy he said it wasn't her Jra affecting her knee this time he mentioned something about anterior knee pain unknown .To come off the naproxen and she is now off the joint list and just got to do physio . However when I took her to the Gp 4 days ago he said the knee is very badly swollen which I see it is and he said he could extract the fluid there and then
for her .As my daughter is needle phobic and usually has a general anaestetic so she is out cold .I said no that would not be possible .I did think of trying to really coax her to have it done and push her to get it fixed straight off with him. I put this to the rehumy he said the doc would have not found any fluid . So in my mind I'm thinking as aparent I just feel scared I could hear one doc and take their advise and this is my child they are prodding and injecting and it makes me feel vunerable to making the wrong choice for her . I asked what other drugs were there now also for Jra he said the only difference between now and 10 years ago when she was first dx was not they joint inject instead of using naproxen first .....
for her .As my daughter is needle phobic and usually has a general anaestetic so she is out cold .I said no that would not be possible .I did think of trying to really coax her to have it done and push her to get it fixed straight off with him. I put this to the rehumy he said the doc would have not found any fluid . So in my mind I'm thinking as aparent I just feel scared I could hear one doc and take their advise and this is my child they are prodding and injecting and it makes me feel vunerable to making the wrong choice for her . I asked what other drugs were there now also for Jra he said the only difference between now and 10 years ago when she was first dx was not they joint inject instead of using naproxen first .....
I hear you when you are nervous about what to do on making choices for your child. I have heard great things about injecting the steroids into the joints. I am not sure about removing the fluid. Wouldn't they do a test (MRI or xray) before doing any injections? That way you can be sure before poking her that it is necassary and needed.
And, you need to remember. Some docs graduated at the top of their class, and some graduated at the bottom. If you aren't happy, then switch drs. Treatment shouldn't be so confusing for the parent if the drs know what they are doing. Kymberli