Yes I have tachycardia . Need to look up the exact one to be sure. Can't do it right now because I need to get to sleep. When attack a occur it always scares the hell out of me. Not much can be done really. I'm looking for support groups to share what we go through. Maybe that will help me deal with it. That's why I'm writing to you. Please respond if you care to chat.

Hi Nanz, I have been diagnosed with this for about eight years now. arrhythmia encompasses a huge variety of types.. so would be helpful to know what you have. Do you get shocks from ICD ? Or you have palpitations when you say attacks? I'm looking for some groups too....

Hi Viper! I have SVT. Diagnosed about a year ago or less. I started having dizzy type spells, then the rapid heart beats. Now I just seem to have rapid heart beats. It can go away for months then return like the little monster it is. Doc said to take cardizem but I don't tolerate it well because when I take it my blood pressure drops too much (my blood pressure is generally low unless I'm having an episode). I just don't know what to do. Trying to figure what triggers it but that's not easy because sometimes it happens while I'm sleeping....what a rude awakening. Do you know if vitamins help? Heard magnesium and COQ10 are beneficial but I don't know. Ablation scares the heck out of me but the doctor said the episodes don't occur enough to really warrant that procedure (whew). However, I've had three episodes this past month. Before that 5 to 6 months had passed. I'm a very active person and this is making me afraid to do anything.

Are we listing all of our arrhythmias? Let's see, I have Atrial flutter, A-Fib, SVT, PVC, Ventricular Tachy, and the biggie Ventricular Fibrillation. I sport a CRT-D, for the novices here that's a Pacemaker Defibrillator on steroids. I have enjoyed my fair share of Jesus Jolts. Thankfully those worked well, but the ATP not so much. It's clear you're an old hand at this, was there a question or just looking for like abled friends? I know many of the old timers left awhile back for various reasons and this site has been a bit slow for sometime.

Hi Nanz, it's quite annoying when it starts happening suddenly. In my case I used to have continuous ticking type palpitations all the time. Maybe it was the side effect of drugs or attempt at ablation, It used to be difficult to sleep or even sit idle. The palpitations slowly faded away but were replaced by some weird jolts I used to get whenever I was near sleep or sitting idle for a long time. Doctors used to ignore this as long as I was hemodynamically stable, guess that meant proper ejection fraction and other ratios etc.
Thing is the more you focus on it the more it bothers you. I could feel my heart beating coz I used to always think about it and focus on it...
Might sound cliche but stress directly impacts all this.
The more I used to worry and pay attention to all this the more I used to feel them.
I started ignoring the weird sensations coz there was nothing I could do about them and the doc wasn't concerned.
Today I do feel the symptoms every now and then but I'm happy as long as I don't get a shock from the machine.

Regarding the vitamins I'm not sure, I havet tried anything. Personally I dislike taking any meds...never had any in my life before this came up in ECG.

Ablation, if doc says u don't need then don't go. It's coz your problem is non life threatening I believe. Ablation is an attempt to solve the problem,however it may or may not, depends on each case. It cudnt in mine.

Hi RoboCop, nice to meet you. Not listing stuff, just wanna share experiences and meet other people and have a better understanding of this disease.Tired sitting idle with this.
Also, whatever you stated was what you have but I'm more curious about why you have. Is it genetic in your case too?
Why did the old timers leave? Any idea?

Hi again Viper. Yes indeed stress will set it off. Driving in the city can be insane (another set off). What does seem to help is taking Clonazepam (a valium type drug). Do you know if certain foods set it (SVT) off? Sugar, meat, alcohol? I like to have a glass of wine occasionally but stopped because now everything frightens me. Ha......that's not very good is it because that can bring on stress.

Hello Nanz sorry for the late reply, had a bad day. Yes, coffee was a realisation for me. I had observed having more palpitations few hours after after having coffee and then a bit of googling confirmed it. Caffeine does exacerbate arrhythmia.
Im a teetotaler, however I had wine in good amounts many years back. It did seem to have an increase in the palpitations, but that maybe because I didn't regularly drink. It's always mentioned that alcohol in excess has bad effect on arrhythmia, however I'm unsure about moderate amounts in regular. Better to confirm with your doc.
Apart from that I didn't notice any instant affect of any other food item.
Tea doesn't have any bad effects so that's what I rely on.

Anything specific you noticed?

How have you been doing now?

Hi Viper.....I sent a message before but I'm not sure where it went because I'm not too handy with this site just yet. It's weird the way it works.
I drank caffeinated tea last week (unbeknownst to me) and it might have had an affect because I had a frightening episode about an hour or less later. Heart pounding like like it wanted to get out of my chest. Scares me and I think I panic making it worse. This is why Clonezepam helps. I've been noticing lately the episodes are happening more in the morning but I can't put my finger on what could be setting it off (except maybe the tea that day). Today I got up, had breakfast, took a few vitamins, did laundry and a little later it started.........this time it was just a heavy foggy feeling in my head as though I'm not thinking clearly, heavy feeling in body especially around my shoulders and neck and shallow breathing. Took bp and p which all turned out very good to normal. Maybe I need to see another doctor to get a second opinion. I'm so confused and tired of it all.

Hey I have tried sending one too, just check. Don't think we get a notification for a message on this site.

Why do I have Arrhythmias...well they really aren't sure probably a preponderance of issues. I've had multiple heart attacks, quad by-pass and mitral valve replaced. Have CHF with an EF of 20% cardiomyopathy, and mitral prolapse with the new valve. Many of the arrhythmias manifest after the open heart in 2007 but surprisingly haven't gone away and even an Ablation was unsuccessful. Full time pacing for LBBB has masked some of the issues but basically I've just learned to live with it.

I believe many old timers left out of boredom and burnout. Over time you tend to see the same questions and issues repeatedly. People just naturally move on. I've seen the same at ICD Support Group and Pacemaker club where very few old timers remain. Of course the negative aspect is that a lot of erroneous information gets passed on to newbies by well meaning people who really are poorly informed themselves.

Hi there, I have PVCs and short bursts of NSVT. No treatment at this time because of a healthy heart but still scary. No genetic issues, simply taking a weightloss supplement brought them to life. I have been dealing with them for about 5 years now. Come and go but it is what it is. I had to really get a F IT attitude because of the high level of anxiety they caused. I am back to working out 5-6 days a week and feel great, it def helps.

I hate meds, especially those designed for our hearts. After trying meds and supplements for 4 years I was put on a high dose of Vit C for another issue. I cant explain it, but no PVCs, ACVs or Afib since that time nearly 2 years ago. I havent taken so much as an NSAID since then also.

Thanks for the reply robopop. 20% must be tough.
True it can be tiring going over through the same things again and again.
Sometimes it's not the disease though, its the ways in which it affects ur life's decisions that really calls for support.
Like I'm not sure what to make of the shocks I have started to receive in the last year. With most of my life still ahead of me, sometimes gets a bit daunting.
Because of the fear of shocks I'm scared of exerting my body and my mind to greater stress levels that are requisite for a budding career.
Haven't seen the ICD group, I think I will have a look at that one too.

Hi DaniRae, that's really scary if some weight loss supplements can affect the heart.
True working out is a great stress buster and somehow brings positivity in the thought process.
However, docs have asked me to avoid exercise now.
Might have to resort to yoga or something now I guess.
Hope you doing great now :)
Also, what was the supplement you had? I would want to b on a lookout for such things.