Arnold-Chiari Malformation Support Group
Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.
Katie-Davison
Ok so surgery was tuesday afternoon (1pm)... and I stayed in the Neuro ICU until yesterday (Friday)..and was sent straight home from there.. my surgeon had to make my incision a little longer than planned and remove a little more bone than expected because my brain was pretty crowded.. the first couple nights/days were pretty rough.. lots of vomiting, couldn't didn't eat solid food until yesterday... but now I'm home and feeling pretty good.. i think the biggest challenge from what i've read and my experience so far is getting on the right mixture of pain meds.. i'm on some heavy duty ones right now.. Thanks everyone for the tips, advice, prayers and well wishes.. I feel like my balance has already improved but it's hard to tell at this point. The tanks tops worked out great and i actually think a chiari pillow may have benefited me.. i had a LOT of trouble getting comfortable in bed.. Just in case any of you are having surgery soon, it might help you, and i know its easy to make your own.. And it is totally true that the way you want to lay comfortably changed about every five minutes.. Anyway.. just wanted to update and thank you all for the support. God bless and have a pain free day, week, month...etc :)
P.S. any body in or near jersey, UMDNJ (Dr Liu) could NOT have treated me better. :)
P.S. any body in or near jersey, UMDNJ (Dr Liu) could NOT have treated me better. :)
deleted_user
Hi Katie I'm so pleased to hear your doing well, you make me feel better about the prospect of surgery! Hear to a pain free future and quick recovery. Take care and keep us updated! xx
deleted_user
you are recovering quick but dont push yourself..listen to your body and try to get losts of rest..Glad to hear all is well
deleted_user
Glad to hear you are doing well Katie! The best advice I received after surgery was do not push yourself too hard. I hope you have a quick recovery!
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