Arnold-Chiari Malformation Support Group
Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.
I had the same problem in the begining. My parents and husband both kept writing of my pains, and other symptoms such as numbness, nausa, etc..as anything and everything from the way I sat, ate, slept, or even sneezed. It was very frustrating since my husband had been to all of my doctors appointment, and my mother had been to most as well. I have in the past year since my diagnosis that they kept telling me the symptoms were caused by something else or were nothing to worry about as an attempt to keep me from being so worried and a way to try to convience them selves that there was nothing seriously wrong with me. It seemed as though I could handle my diagnosis and at the same time it was too much for them to be able to handle. They were all to afrade of what my future might hold.
Sorry to o on so long but hope it helps. I know it's frustrating, but give them time, we all know how scared confused and frustrated we were when we were diagnoised o think about how upset the one that love us must feel when they hear the news and must deal with it in there own ways.