Anxiety Support Group

Anxiety is a physical condition marked by intense and persistent feelings of distress, fear, angst or dread. General anxiety caused by routine day-to-day stresses usually passes quickly and is experienced by almost everyone at one time or another. However, such feelings that linger over time and are very difficult to cope with, and which lack a clear cause, may indicate...

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Anxiety Disorders
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Living with a debilitating embarrassing disease

dbwole338
dbwole338

hi, my name is .denise Troy.   I have essential tremors disease.   It is much like Parkinson disease...my disease has moved into high gear and I have facial tremors , shoulder tremors, leg, arm, hand, fingers....you name it..it shakes.  I wear weighted gloves to help keep the hands down...but when I go in public, I always worry that people Weill think i


,m a draggy because i.m shaking uncontrollably......I worry about what ebverupyine else is thinking all the time.   Y husband has thicker skin and doesn’t think I should care....but it eats me alive...I worry about everything...which this why i,m on this board.   They say my disease is one of the most embarrassing...up there with Parkinson disease......I also stutter...you see I have seizures...talk about getting embarrassed...have a seizure in the middle of Walmart...that.s embarrassing.   And causes anxiety through the roof.   So the stuttering makes me not even want to talk to people...but the books i,ve read, and my speach therapy say that it is important to speak and to try to stand tall and not be embarrassed.   I start by explaining....I stutter because I have seizures so if you cannot understand me pls let me know...that usually helps me to feel better and helps take some of the anxiety out of the situation but it is so hard to get the stare things to say it.  They know me at the back and grocery store so I no longer need to say it, and I have a service dog so he gets lots of nice anpttention and that helps calm the anxiety, but then I will walk out in the parking lot,and the anxiety will rise all over again...becaue I am tremoring alllocer and look a mess and I stutter so bad and I have this nice little dog and we look like a circus show.


ok, enough for now,  if I can make one friend on here I will be thrilled.


Denise

patti22
patti22
It's hard. I've known a couple people with it, and after awhile, myself, I don't "see" it anymore. I will almost have to push myself to notice the stutter and/or shaking.

That said, I can only imagine how hard it is to keep explaining over and over again.

Supportive hugs, Patti
Tired
Tired
Is there a support group you can go to. That might help. There is a cashier at my local grocery. His hands are always shaking. I know it's not much
compared to your problems. But after the first two times seeing him it was normal. This persons hands shake. Doesn't matter to me.
SimpsonsOK
SimpsonsOK
Hi DB and welcome aboard. I have essential tremor also. Diagnosed at 5 y/o by pediatrician as parents were concerned that I could not draw straight lines or proper circles to print letters (put me under stress). In recent years it has rapidly moved. I joined the Essential Tremor Foundation, which was helpful for ways to work around it. Neurologist has placed me on meds to help relieve them. Use less on home days, more on days I need to be out in public. Hopefully, we can support each other in this journey. Healing hugs.
dbwole338
dbwole338
So simpsonsok, how do get feet a car ride, it is such a challenge for me to get out of the car and it takes me several minutes to get steady on my feet...sometimes never...lol...I,ve also found, that it exhaustsme...if I do things with my husband, because I feel like I need to keep up with him, so I will work in the garden or ride the tractor...it wears me out so bad that I end up sleep for hrs. The dr finally found a sleeping pill that does give me rest all night...I was being woken up by the tremors every hr or so....but this new pill is a blessing.....how have you coped all your life?you r one strong person! Good to meet you.. I.m Denise
arfie
arfie
After I agree with your husband that you *shouldn't* care, I'll get real about how hard it is to find the anxiety off switch and actually NOT care without dissociating. Wouldn't it be lovely if there was an off switch for anxiety? I'll take two of them puppies. My anxiety levels will probably fry the first one, so I better get a back up.

Hope you feel safe venting about it here, DB. Welcome to the forum.
Community LeaderMid
Mid
Welcome to the group. It's important to remember that from someone else's perspective saying "it shouldn't" does NOT mean it's yours.
Key to managing medical conditions naturally (which anxiety is natural), is understanding we are responsible for what we say, do, and respond. Changing how we look at the medical condition, it does NOT define us as a person, it is a part of us, and venting safely in a place where your feelings are accepted as valued provides a measure of relief with the anxiety.
You are not alone with this. The biggest key with essential tremors is knowing they can go into remission.
Best wishes.
dbwole338
dbwole338
What.....no one ever mentioned remission, ever..I mean ever... is this true...how can this happen, what can I do...how do I do it, sign me up. My seizures have made the disease progress so fast that they are fast tracking me on all the meds and the next step is medical maurauna...I am THAT bad. My dr even said absolutely to us trying regular Marauna at home...I will not..I have never and will never break the law.
Community LeaderMid
Mid
The relaxation exercises, breathing exercises, the gentle flow motion exercises all will help you get the anxiety levels in a better range.
Yes, it is possible for remission. It takes determination, courage, and being able to keep a daily journal to help you find the patterns for your self.
You are not alone.
dbwole338
dbwole338
I definitely already keep a journal, one for the dr.s to keep track of my seizures and my new tremors....and I started the journal on here too....hopefully that will help. I used to do Pilates a bit...I am disabled from a spine disease so it was my own form of Pilates...but it helped me to relax and do stretching exercises...I.m hoping, once the seizures are under control I can get back to that...the dr.s don’t want me exercising now because it causes the seizures. You have really opened my eyes on this, and I will try my hardest to be a more calm person....although I worry all the time about every little thing, so this will be a great feat. But it is a good goal. I appreciate your help...have a great day!
Denise
Community LeaderMid
Mid
Give your self a time limit to worry ... then stuff it in a box, and do this as often as you need to.

You'll find your way through this.
dbwole338
dbwole338
You sound like my husband, lol....guess you guys are right. I will try this, but it will be hard for a self.proclaimed worrywort. Thanks. Take care
SimpsonsOK
SimpsonsOK
Still here with you Denise. When I can get upstairs, will look for a book that helped me a great deal to deal with the worry syndrome. Simple mental exercises. Healing hugs.
dbwole338
dbwole338
Sounds great...but don’t hurry, I.ll still be here..worrying.lol...but seriously don’t do the stairs unless u have to!
SashingtonElliotsworth
SashingtonElliotsworth
I'd take a lyme test, regardless of how sure your doc is. And use Igenex lab, they're the experts and do a good western blot, not like the junk elisa test.
It's good to know now, cause it can pass to baby thru placenta or breast milk.
Best wishes
Aloha
dbwole338
dbwole338
Thanks for the thought, but I was neg for lymes...it.s just a strange act of God that I am seizing at this age.but thanks for thinking of me..take care
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