Does anyone with severe AS or has been diagnosed for 4+ years find that most days something new hurts, or it won’t hurt for a month or so then it suddenly comes back? 

Sometimes it’s my neck or upper back, sides and very occasionally in my knees and feet. I go to a chiropractor when needed and that provides some relief for maybe a week or less.

I’m worried that because I was on a medication that did nothing for me for about 3 months my AS progressed, as I was having ‘shiny corners’ or the very start of new bone growth on my lower spine vertebrae before my 3 month flare up. I’m only 18 and I’ve been diagnosed since I was about 13, I don’t want it progressing anymore. I am now on Remicade that is doing a good job on keeping the pain manageable.