Does anyone with severe AS or has been diagnosed for 4+ years find that most days something new hurts, or it won’t hurt for a month or so then it suddenly comes back?
Sometimes it’s my neck or upper back, sides and very occasionally in my knees and feet. I go to a chiropractor when needed and that provides some relief for maybe a week or less.
I’m worried that because I was on a medication that did nothing for me for about 3 months my AS progressed, as I was having ‘shiny corners’ or the very start of new bone growth on my lower spine vertebrae before my 3 month flare up. I’m only 18 and I’ve been diagnosed since I was about 13, I don’t want it progressing anymore. I am now on Remicade that is doing a good job on keeping the pain manageable.
I'm having a hard time now more than ever and need to come here and read posts and vent. I'm 62 and don't want to face the fact that I'm elderly now. I have primary MS now. What started as no big deal 19 years ago has now left me in a wheelchair, divorced 10 years now after 30 years because he couldn't deal with me, have a boyfriend for 10 months, but he has COPD and is declining so can't help me...
Dear All,I have create a whatsapp group for people having AS. Please send me a whatsapp message to my number and I will add you to the group.+91-9818371291.Regards,Mukesh