Anemia Support Group

Anemia (or anaemia), which literally means "without blood," is a deficiency of red blood cells and/or hemoglobin. This results in a reduced ability of blood to transfer oxygen to the tissues, and this causes hypoxia; since all human cells depend on oxygen for survival, varying degrees of anemia can have a wide range of clinical consequences.

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Heart, Blood & Circulation
/ Anemia Support Group

spherocytosis

deleted_user
deleted_user
Is anyone familiar with sperocytosis? My daughter was diagnosed as soon as she was born. She had three blood transfusions her first 3 months of life and was fine until she was 2 1/2 years old. Her knee ballooned up on March 15 and she has since been diagnosed with JRA. It appears that the JRA has aggravated the anemia. She has required two additional trasfusions since she was diagnosed with JRA. Does anyone have any similar experiences?
deleted_user
deleted_user
I was born with hereditary spherocytosis,
JOIN My Hereditary Spherocytoctosis Support Group!
deleted_user
deleted_user
I am so sorry that your daughter has JRA. Hopefully, all of the conditions can be well managed. Good luck!
deleted_user
deleted_user
My son has HS. He is in his early 20's, and he had his spleen removed 3 years ago. He was very healthy after having the spleen out, it changed his life for the better. Before the splenectomy he was thin, weak and pale, and had to home study as was too unwell for full time school, he caught everything going around. The past 6 months however, he has had a lot of knee and hand pain. Ultra sound shows water on the knees. Blood work indicates Lupus, we soon (few more days) will know for sure whether it is Lupus or not.
Taking 5 mg of folic acid is VERY important with HS patients, hope your daughter is taking a folic acid supplement..
Good luck, I hope your daughter will get some help for her RA as well as the HS.

I am not sure if the two are linked in any way, other than both affecting the immune system.
deleted_user
deleted_user
Hi. I hope everything's working out for you guys.

I'm 17 and I have spherocytosis and since gallstones are common for those who have spherocytosis, I had to get my gallbladder removed. I haven't had my spleen removed yet though. Anemia comes with spherocytosis. Keep an eye out for gallstones.
I can't help you with JRA, but for spherocytosis you should look out for a drop of energy. It can happen at any time. My father had to get his spleen removed at age 3, but my cousin kept hers until age 13.
Just... be careful.
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