Hi. I've had ongoing iron deficiency issues for 4 years now. Have had all the tests and no bleeding found anywhere. I've had iron infusions on average every 6 months. Last one was in January, and it's being recommended I have another because my iron stores are pretty much non-existent. My hematologist was sure that once I stopped menstruating, the problem would go away, but I haven't had a period in 5 months, and here I am with the issue again. In those four years, I've had a blood transfusion, at least 3 short injections of iron and at least 3 long injections. Oral iron has not helped the issue at all, so I don't take it. My diet is healthy, and I do not have celiac disease. I am getting a second opinion because my doctor doesn't seem to have time for me (today I waited an hour and he spent about 5 minutes with me and stated again you're bleeding somewhere--I just can't take it anymore). In the meantime, has anyone else gone through this? Searching the internet I can't seem to find any reasons for iron deficiency anemia beyond bleeding, extremely poor diet, or gastro issues--none of which apply. The frustration of being tired, short of breath, having muscle spasms, etc plus the expense of the treatments is getting to me. For background, I hemorrhaged during the birth of my second child (no reason discovered), I have mitral valve prolapse/regurgitation and a nephew with factor 7 deficiency (inherited from both sides of his family)--not sure if any of that is relevant, but beyond that I' am pretty healthy. Thanks!
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