My mom passed away from this disease in May of this year. We live in a rural area and it took the doctors a full year to figure out what was wrong with her. During that time the amyloid did all kind of damage building up in her organs. I cant tell you of the times doctors accused her of imagining her symptoms and sent her home. This disease from what I have learned is seldomly tested for and I would like to know how many people out there have run into this same kind of problems? I want to do something to help make doctors be more aware of this disease and test for it sooner so no one else has to die from it like my mom did because the doctors simply didnt test for it until it was too late. thanks for letting me vent.
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