Hi, my name's Sam and I'm 22. I'm hoping to talk to some people who know more than me and many doctors who will say very little to me. My podiatrist just sent out a referral for a surgeon who could potentially amputate my leg, below the knee. I truly think this is my best chance at better mobility eventually, but I'm scared as hell and I have no one to talk to.
So things about my situation, well, I landed wrong on a trampoline when I was 15, and now I have two osteochondral lesions of the talar dome (my right ankle, dominant side because I'm lucky like that), one is middle-left, and the big one is the talar shoulder, also osteoarthritis. I also have really severe nerve damage that spreads out through the top of my foot, and since the fourth surgery has gotten to the point I can no longer wear shoes, socks, slippers, or even have a blanket touching it- when inflamed or aggravated even the air seems to hurt and I frequently lay awake all night with the burning and buzzing, which I take Cymbalta for. The Cymbalta is also for the depression and anxiety because I rarely leave the house because walking is an ability I use for doing chores because I can't maintain a regular sleep schedule or function- I'm getting off track, sorry.
Surgery 1 was a four inch long incision and removal of the two shards of bone that were too small to reattach, cleaning out the single lesion of the talus at doctor could see at the time, and using kwire.
Surgery 2 was arthroscopic, clearing out the scar tissue, scooping out more of the talus that had died, and this surgeon discovering a second lesion that was a hidden pocket of blood and scooping that out, and using kwire.
Surgery 3 was a DeNovo transplant, arthroscopic, scar tissue was scooped out, both lesions were cleaned out, then both lesions were filled with young ankle cartilage and an adhesive was used.
Surgery 4 was clearing out as much scar tissue as possible until it was more harm than good so he left some, the transplant took as well as it could but it's not bone so the edges aren't great.
I've tried a cortisone injection, I've tried acupuncture, I own a wheelchair and now a knee scooter that I use when I HAVE to go out (groceries and doctors yay), I also have crutches and a cane and those are more for home use. I've tried Tramadol, Norco, as much ibuprofen and tylenol a human can have without dying, and am on a regular prescription of Percocet now, and I use marijuana almost daily but few things actually reach into the deep bone pain. My pain management specialist is trying to get some form of slow release pain patch authorized because my pain is all the time always and no one likes the "pain roller coaster".
I'm miserable, I've lost the ability to do...basically everything. I used to love sports, and swimming was my passion in life. I learned to swim before I could walk, but now I can't even do that because the water hurts my foot too. Even a bath.
I'm an eternal optimist, and I'm willing to try just about anything but my options are very limited now. I don't want more and more pills to be the answer, I can't wear any kind of brace because of the nerve damage, fusion and ankle replacement are not things I'm willing to try because neither of those things would address the nerve damage at all, it hurts like walking on a broken bone and all of my toes are partially numb, my whole leg is getting more and more painful because I can't stand or walk correctly and this April 24th it'll be 7 years of this.
I think I'm making the right choice??
I'm 25 I was born with a pretty severe clubfoot and then wen I was 12 I was hit by a car broke my leg in four places compound fracture I had an external fixater screws in my ankle I've had many surgeries to try and correct the club foot bone of eich were successfully. I have no motion in my ankle or toes as all the joints are fused together I suffer from regular cellulitis infections my knee is...
Several years ago I began having difficulty with bloodflow in my legs, and at that time I was given teflon arteries to help with my condition. My condition has been getting worse over the past several years and the pain has become unbearable. I have had two different opinioins and have been told that both legs will need to be amputated. I live alone with my dogs and am terrified that this will...