Id had a long gruelling few days leading up to Sunday making all the bakery snacks for the 100 guests that would be attending my stepdaughters traditional Indonesian prayer ceremony to mark her Seventh month of pregnancy but I was feeling in high spirits as all the products had turned out OK and without any mishaps or to much confusion in my mind, whilst I had been doing this my dear wife Sumi along with eight other friends and family were busy preparing all the meals to feed the guests.
Then from the early hours of Sunday morning the house was a hive of activity getting everything ready for the ceremony that would take place at 6-30pm all the family were excitedly talking at the same time with lots of deafening laughter and the children getting extremely exuberant in their own way, but I was managing to cope with all the upheaval and excessive noise rattling through my brain, (well that is up until three oclock in the afternoon)

I had just gone into the bedroom to take a short rest as Sundowning was starting to get the better of me and I wanted to be ready for the evening activities when an Indonesian friend of mine arrived with two other people, (I should point out that this is the only Indonesian friend I have left as all the other so called friends who are educated people had quickly departed once Id told and explained to them about my Alzheimers and dementia, to their minds I have a contagious illness) anyway not wanting to appear impolite to my friend and visitors (a lady and gentleman) I went and invited them into the house, then after a few minutes of congenial conversation the lady turned to me and said You Not Remember Me I apologetically said Sorry NO and explained about my Alzheimers she said thats why we come see you I have traditional medication can cure you!! I must admit that the first thought that popped into my head was (Oh no, not another magical Indonesian cure for illnesses) dont get me wrong as Im open minded about traditional or herbal medications but as a supplement to my prescribed medications and I must confess that I do drink such a medication as it helps in controlling my Diabetes and Cholesterol
She then produced a packet that contained, dried leafs, roots, wood bark, and herbs, that you boil into an elixir to drink everyday and again said this Cure your problem!

I took the packet from her and scrutinized the wording on the label and quickly realized from the list that this product truly was supposed to be a Magical Cure for every ailment under the sun! I said to her Oh I see from the list that this is also good for Parkinsons disease she replied YES, YES my friend Cured shaking by drinking this and again said This cure you problem I asked her (Do you understand about Alzheimers and Dementia) again a reply of YES, YES so I asked her to explain the effects of Alzheimers and Dementia to me she said You just forget things!! I said OK and what else??? But she had know idea of what to reply and yet again said This cure you by this time my hackles were starting to rise, so I explained to her as calmly as I could and even showed her an Indonesian medical journal stating quiet clearly that as yet Alzheimers, Parkinsons or any other type of Dementia is still incurable but she still insisted that her traditional medication could cure me!! I could feel myself becoming more and more agitated and apparently the tone of my voice started increasing like a crescendo, so I asked her if the product had been registered and thus approved by the Indonesian government health department, she replied NO so I asked if it had been approved by the FDA she said What is FDA and its at this point in our conversation that without warning my Alzheimers suddenly took control of my being and words, as from what my dear wife Sumi has since told me I became extremely, extremely verbal, shouting There is no cure YET how can you try to sell me a product when you dont understand anything about the illness I was in such an emotional state of mind that Sumi came rushing into the sitting room and had to grab hold of me asking (Whats wrong, Whats wrong) as I was losing my sense of balance, I was waving my arms in the air, twisting in circles holding my head in my hands shouting out in a slurred stuttering voice Look what you have done to me, Look what you have done to me this is another effect of Alzheimers, that you do not understand the room feel into an utter silence as they sat with their mouths aghast not knowing what to say as Sumi took me back to the bedroom and gave me a calming tablet to calm down and then went back to the two visitors saying I think its better you go as youve made my husband incredibly distressed by your none awareness

After about ten minutes I become more relaxed and went back to sit with my Indonesian friend who frantically apologized for bringing visitors to our house unannounced, and he even admitted that hed never realized just how devastating this illness can be as in all the years we have known each other never once has he seen me in this way

As for a Cure for our illness well Im sure that before long A Cure will be found and maybe that cure is somewhere within the deepest jungles or the oceans deep whether thats to be within my lifetime is in the hands of God, but a Cure must be found to prevent millions of other people and their families around the world having to unwillingly take this terrible fraught pathway

Fortunately by 6-30pm I was far more relaxed and able to join in with the religious ceremony

Barry


http://www.simplesite.com/BarrysAlzheimers