Adult Bedwetting Community Group

A place for adults who still have problems wetting the bed to talk about their feelings, to discover solutions, and to talk about life in general.

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/ Adult Bedwetting Support Group

28 M New to Group - Bladder and Bowel Incontinence

coastersrock93
coastersrock93

Hello Everyone,


I am in other support groups online, but just found out about this website.


I am a 28 year old male who had a brain bleed after being born two months premature. I also developed Hydrocephalus from the brain bleed, where my fluid doesn't drain normally without the use of a shunt (tube from my brain to my bladder/pelvic area.) I was recently diagnosed with Autism and Tourette's syndrome two years ago. I also have developmental disabilities, learning disabilities, and nerve issues related to brain and spine damage from being premature.


These nerve, spine, and brain damages caused me to have problems with my bladder and bowels. I am very embarrassed to bring this up, but I also have issues with bedwetting and nighttime bowel incontinence, for which I have to wear Northshore Supreme diapers at night.



I also have problems with my brain not getting the signal to go to the bathroom until it's too late. I'm very embarrassed to mention this, but I have to wear something called GoodNites pull ups during days when my mind is "busy" or I'm in a place where I can't get to the bathroom easily. (setting timers helps, but I still have accidents if I'm in a busy situation.) I have accidents with my bladder and sometimes my bowels. I'm hoping no one will make fun of me for this.




I am hoping these groups can help me feel less alone and that I can share support to others as well.



 

Does anyone else in this group have autism, hydrocephalus, incontinence, social cue issues, learning disabilities, or had a brain bleed as a preemie like me? I feel like I'm alone, and the only one who has to wear diapers and GoodNites for my accidents.



I would appreciate any comments or advice and am grateful to have found these groups to help me.

 



Thanks everyone

joanne777
joanne777
Hi welcome
Lazy_Bones
Lazy_Bones
No reason to be embarrassed here :)

Sounds like you've been dealt a rough hand! There's likely other groups on here who discuss those other medical issues too :)

Can only relate to spinal nerve damage and know what you mean about not feeling when your bladder is full. Don't feel bad, I'm in my 20's and wet the bed too!
coastersrock93
coastersrock93
It helps to know Im not the only one.
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