Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Still working on weaning myself off steroid so I can be retested for Addison. I am down to taking 5mg of hydrocortisone once a day. I have been feeling a little sluggish with sore muscles. I suppose to go back to the doctor the week of xmas. Maybe he will take me off steroid or reduce it to one pill every other day.
I had one episode of throw-up and afterward I felt very weak for a day or two. I didn't go to the hospital or take and additional steroid. I hoped it was a virus and not a side effect of reduced medication. I did not tell the doctor because I am feeling well now. That was about 3 weeks ago. I never had a Addison crisis. Could this have been a crisis?
I had one episode of throw-up and afterward I felt very weak for a day or two. I didn't go to the hospital or take and additional steroid. I hoped it was a virus and not a side effect of reduced medication. I did not tell the doctor because I am feeling well now. That was about 3 weeks ago. I never had a Addison crisis. Could this have been a crisis?
I have been diagnosed with Addisons Disease after almost losing my life in what we now know was an Addisonian crisis in 2006. I have had 3 crises since - 2 of which occurred last year when my cortisone medication was reduced. One of these crises occurred quickly - feeling good and healthy in the evening, but by the morning my kidneys had already begun to shut down and I was rushed to hospital, vomiting, head spins heading into another crisis. I had complained of weight loss, and my edo suggested I might try missing the afternoon dose every second day - however, ignoring his suggestion, I skipped almost every day's afternoon dose and before I knew it, I was in a life-threatening situation.
Prior to my original diagnosis, I had regular episodes of nausea and weakness, which, like you, would overcome after a few days. However these episodes occurred frequently, and by the end, I could not walk or talk, was in a constant stage of sickness and weakness and had blacked out on several occasions.
Muscular soreness is also one of the typical symptoms of Addisons Diseae,
When not receiving the correct attention, Addisons Disease is deadly. And I would never recommend someone weening themselves off their medication without expert medical advice, and strict follow up afterwards.