Addison's Disease Support Group

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone

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rbtowing 08/22/2011

I know I have read about people with Addison's disease that have had tingling in there feet and hands. I have been experiencing this in my feet late in the afternoon. I also had a huge muscle spasm that knocked me off my feet for 10-minutes and my calf muscle was sore for two days.
Is this common? Or is this from something else, I read Celiac disease gets this.
I did drink more water when the spasm started and ate some salt, not sure if that is what I needed or not.
Thank you for listening
Joanne

webber 08/23/2011

I have Celiac and Addison's disease and did not get the symptoms like yours until just before I was diagnosed with Addison's. After I went on the meds. the cramps and tingling almost completely stopped. I do find that I will get some tingling and a small amount of cramping if I have over-worked my body. Then extra meds. and salt plus lots of water always help.

deleted_user 08/23/2011

Potassoum and magnesium help too.

deleted_user 08/23/2011

I have constant tingling in my feet. I had leg camps whenever I was adjusting my steroids.

deleted_user 08/23/2011

Generally I don't get tingling in my hands or feet unless my HC is off and the cramping generally indicates an electrolyte imbalance, which can sometimes be solved by raising HC and/or raising fludro and eating more salt. Good luck RB, I hope you have a wonderful week!

- Kristen

rbtowing 08/23/2011

thanks for the replys. I thought Potassium is something that we need to stay away from, we are already producing too much and not enough sodium, but I don't know this.
I will look into Magnesium and as far as my meds are concerned I don't go back to my endo until the end of September.
Funny how everything is connected to this disease and when I was first diagnosed I was told all I had to do was take HC and live a normal life.

deleted_user 08/23/2011

Yes most definitely stay away from potassium, it'll cause more problems in the long run.

deleted_user 08/27/2011

I get WHOPPER cramps in my legs and feet! Sometimes in my hands. I live alone...and when I get them at night - and they are excrutiating - I nearly faint. I've let out some vocal groans, for sure!

My foot/toes contort in the oddest ways. It takes everything I have to calmly work my heel to the floor and try to relax. I use a heating pad for comfort.

Yes, like you the soreness can persist for days. I drink tons of water...eat lots of salt...oh, and my favorite new cocktail is pickle juice!!! I used to drink soda water for the quinine, but was told it could be harmful...so, stopped that.

I celebrate the days I DON'T have cramps.

Best wishes....Ingrid

deleted_user 09/01/2011

I get this as well but i also have hypoparathyroidism. My calcium gets low and this happens. Calcium is also an electrolyte. Myabe you should have this checked as well.

deleted_user 01/03/2012

Have you ever had this problem at night, like with restless leg syndrome? I started having RLS about 4-5 years ago and finally asked my doc about it. I am taking Requip, which is an anti-Parkinson's med, for it and the tingly has pretty much gone away.

Silkakc 01/03/2012

I had tingling feet and hands till I started sublingual B12. The range for B12 was 220-900 and my levels were 230. I was still in range but had severe tingling and electrical feelings in the soles of my feet.

I try to take B12 once or twice a week. My levels were 740 two weeks ago for my last physical:) My feet never tingle now.

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