Darla, have you posted on the hypothyroid site with this question? There are a few people on that site that have done a lot of research about the links between addisons and thyroid. It's actually getting pretty common on the thyroid site. I would start there and come back here if you don't get the help you need. Good luck.

No I havnt, thanks Lynn , is there something wrong with this site? I havnt been getting daily emails like I use too

New to this site. Have Hashimoto's thyroiditis and Addison's disease. Looking for support group. Diagnosed with Addison's in 2004 and made a pretty easy transition with meds and a couple of emergency room runs. Lately I have a revisiting of that overwhelming fatigue we all have had. I am 67 years old and don't know if I am just getting old. Have had a rough year--burning mouth syndrome, and no resolution why I am feeling worse. Lots of doctors and no results. Anyone else ever had burning mouth disease? Do you have periods of less fatigue and then more fatigue? I am retired so I am able to nap but I am sleeping my days away. Hope to hear from you. Thanks.

Welcome. You can start your own discussion thread anytime to avoid being lost in someone else's post.
I have never heard of "burning mouth syndrome". Can you tell us about it?
I am familiar with the fatigue roller coaster. I have ready many comments from folks who feel nearly normal on their steroids but that has never been the case with me. As I am aging I require more and more rest. Have you checked with your doc? I have found that I need to listen to my body and rest when it says rest. But to answer your question I am managing my life around the need to rest.

Just found your response. Soooo bad technologically! anyway, burning mouth syndrome is a tingling pain in the tongue and around the mouth--sides of checks and under the lips for no known reason. My family doc thinks it is a small nerve fiber neuropathy. I am off the pain meds now. I just have this horrid spongie feeling in my mouth. i have been to my dentist, a dental specialist, a neurologist, an allergist, an ENT and my endocrinologist. All my numbers are normal except the parathyroid was high normal. I have given more blood to Quest in the past six months. The worst outcome has been post nasal drip and dry mouth and fatigue. My endo was so nice but he had no answer. He increased my hydrocortisone to boost my strength for a week. Today was the first day and I think I am less fatigued. Psychological, I imagine. He thinks my hair loss is related to the Hashimoto's thyroiditis. Rogaine, here I come! It is so wonderful to talk with someone who understands. Thanks so much. Looking forward to hearing your story.

Does rogaine help? My hair falls really bad. Wish I could help u, I never heard of mouth issue u have, but I do have neuropathy in my feet and legs, very painful, I can't stand very long, it's from Lyme disease, best wishes to u

Darla,
Haven't tried Rogaine yet but a girlfriend says it helps her. My mama had neuropathy and my heart goes out to you. When I was having pain in my mouth I thought of her so often. She is gone now. Do you have diabetes? She did. About your thyroid decrease. I understand. Seems our input might have some bearing as they experiment with dosage adjustments. My endo let me up (5mg more in AM) my hydrocortisone the past two days and I swear it has made a difference already. Can that be? So fast? or am I just imagining it. Imaginary or not I am loving having a bit more energy. I know when I have gone into the hospital with crisis I feel the intravenous right away. Of course, I was dehydrated and that may have been what I was experiencing. Did you start your new dose? I always have trouble adjusting fludrocortisone. I live on the desert and summers are so hot I have to adjust it. Let me know how it goes if you adjust. what symptoms do you exhibit? Later..