I was never very tolerant of the heat before and now it's even worse. I find I sweat more, I'm very easily sunburned, I start getting signs of head exhaustion very easily and after a day in the sun I'm more wiped out then I ever was before. I've been finding the fine balance slowly but surely this summer. One of the main keys is to hydrate, hydrate, hydrate and remember the more fluid you introduce into your system the more sodium you need too.

To cool myself I keep a spray bottle of water with me so I can mist myself down if I'm not near water. I've also very recently invested in sunblock clothing, I look a little funny wearing long sleeves and pants in 90+ degree weather but I'd rather be safe than sorry. If my sunblock clothing is in the wash I wear lots of light colors, mainly white when being outside. Darker colors absorb the light thus making you heat up quicker where as white reflects the light and keeps you cooler.

Slather yourself in sunblock too. Don't forget your ears or the tops of your feet (I learned the hard way recently and fried my ears and top of my feet really bad while out fishing). Perhaps even invest in a really nice sunhat. The steroids we take make us more sensitive to the sun and our skin burns/tans more easily than the average person. My ears have vitiligo on them so they didn't tan but the top of my feet are easily 3-4 shades darker just after one incident.

Oh and I keep a good sized umbrella in my car to use for shade when there isn't shade nearby.

I'm sure others will be able to chime in with more info :) I hope you have a great day!

- Kristen

I too have become severely heat sensitive. I do get my 'sun-dose' of Vit D early a.m., or very late afternoon, when the sun is weakest, but only for 15 min. I can't tolerate the midday sun, unless I'm submerged in water & I don't exercise outdoors, until sunset.

Kristen is right - sun screen & hydration are imperative. Either way, if you enjoy the sun, do what you would normally do, as long as you're cautious. Instead of thinking "illness", consider any changes in your routine as a positive...you'll maintain youthful skin & prevent wrinkles :)

My solution is not much help for active people. I stay inside where the a/c functions very well. I avoid being in the sun and heat at all costs. When I have to go somewhere, I try to find a parking place as close to the door as possible. When I had to go to a graveside service a couple of weeks ago, I took freezer packs in my purse, and I had to use them. If I'm somewhere that I can ice my arms and neck, that helps. I have worn a freezer pack inside my clothes. At a wedding where I could not ice myself, I discreetly used the alcohol wipes that I carry with my injectible steroids. The heat is one thing that has definitely changed my lifestyle...no more boating with friends, no more outdoor activities in the summer, no beach trips except in the winter (I have gone with friends, but I stay in the condo while they enjoy the beach), and no trips to other hot climates. I hope I don't sound like I'm complaining. I'm so very thankful for a house and for a/c. Staying inside is not a big problem in the grand scheme of things. Good luck to you other hotties!!!

Hey Alabama,
I'm always glad to see your helpful & enjoyable posts. I never thought about using alcohol wipes, but will now definitely use them. I hope you're keeping as cool as possible, given those high southern temps. Thanks for the 'hottie' tip :)

Hi there

This link from a UK based charity for Addison's:

http://www.addisons.org.uk/info/manual/travelling.pdf

Has a really informative section on dealing with hot weather at the bottom!

Hope you're all well

-Pippa