Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone

You were in the ER? What did the doctor do for you? Why did you go to the ER?
An adrenal crisis is when your blood pressure drops under 90/60. You might then pass out, or start to go into shock. You need IV steroids at this point. But you can usually control getting this sick if you dose right when sick.
The problem is a lot of doctors don't understand how much Addisons effects how badly you feel or how sick you can get pretty quickly. A little virus will hit you very hard. Your daily dose is probably not enough so you don't get sicker. Doctors lack of knowledge with this disease is not good for us. I had one ER doctor told me I was too complicated to treat. He brought down an ICU doctor and they treated me together. I was very thankful he admitted he didn't feel he knew enough to treat me.
Did you see why I was in E.R. in my seperate posting? See now, I felt the doctor was wrong, and I so I upped my dosage. But now here is what I want to ask. I am feleing better but still weak and tired and breathless. Should I keep updosing maybe 5 mg per day till i feel better?
Also, I think u answered my question, if I were in a crisis my b.p would always without question be low? So if my hubby takes my bp and it's not low I can pretty well assume I am not in any kind of crisis?
Thank you so much for your help. This was a very terrifying experience. I was sure it was a crash due to the previous day's nausea. Now I am wondering was that just the virus brewing? But it was strange because it lasted for just an hour or so in the am and then went away. I've only had that with Addisons'.
If you couldn't walk and felt like you were DieIng it sounds like the beginning of an adrenal crisis. But you can feel very bad and just need extra steroids to get over what you have. You do sound like you were dehydrated. You need to keep on top of that. That could be the reason you needed a central line, why your veins didn't work.
I found DS just like everyone else. I needed answers to my questions that I wasn't getting from the doctors. This is a good place to get answers and support. I hope your doing better today.