I am sorry to hear of your health problems. And that you were told you could take a few pills and just continue your life. Very few of with Addision's just continue our lives. But you have come to the right place. We are a very supportive community. With years of practical experience. The fatigue is very common. It is one of the biggest complaints we all have. The steroids are supposed to replace your cortisol, but don't do as effective a job. How are you taking your meds? The longer you take the steroids, the more in tune you will get with your bodies needs. It will get easier, I promise.

I sure feel isolated. This is a rare disease. Make sure while you are home to sleep when ever you need to. Keep hydrated with gatorade or pediatric electrolyte has less sugar, for your electrolyte. This important with Addision's.

A lot of people will give great advice here. Just ask good luck. Welcome to our little community. Write me anytime.

Lynn

Welcome to our little group! This is truly a supportive group of caring people. Whatever you are going through at least one of us has gone through something similar. Lynn is quite right, the fatigue is very common but does not need to rule your life. We all have bad days but the good days can be wonderful.

I was diagnosed with Addison one year ago and had my first real Addisonian crisis on Sunday. I am doing fine now but it was another learning experience in Addison for me.

Take your meds without fail, keep salt with you at all times and have a HC injector in case of emergency. Stress dose when needed, eat well, exercise whenever you can within your limits and try to keep a positive attitude these all help.

Webber

Thanks so much my concern is that I am so tired that I have been unable to work, this scares me, my husband is a rockstar and is okay with me quiting my job, which I had do to as a controler for a large construction company and found that because of feeling so bad everyday that I always seemed that my mind was not as sharp as it needed to be and in fairness to my wonderful employer I had to do what was right for him. Are you able to work, I am hoping that at somepoint I can get back into the workforce...the money sure helps us.

livingin....
I am sorry to hear of your problems. It is a horrible thing to have to adjust to life with no cortisol. I don't think the doctors understand it much at all because they always say you can have a normal life just taking your pills every day. I have yet to meet anyone with Addison's that felt they had a normal life. That being said, there are many of us that continue to work and function in the world. I work full time, as do many folk here, and some even continue to pursue athletic pursuits. But, you have to get to know your body, how much steroid you need to take and when. The fatigue is never ending for me, a constant ongoing battle, but if I conserve my energy and use it for what is important, such as my job, I can get through. I don't have enough energy to pursue a lot of active things like I used to. I tend to sleep away my days off. But, I function. It takes some experimentation with your steroids - whether hydrocortisone or something like prednisone works best for you, how much florinef you need, whether you need to take your steroids twice a day, or more. How much you need to take extra when you are stressed, or working out hard. You have to try to learn as much as you can about the disease, and then try to learn as much as you can about how your body responds. It is very possible to get to feeling well enough to work again. I hope you can find your way through to feeling better. I'm sorry you had to have your adrenals removed. That is a bummer. Good luck to you.

Vanyel

Thanks so much for your words of wisdome, it has given me hope that I can get this figured out!!!!!

I am sorry to hear that you have been diagnosed with Addisons.
When I was first diagnosed last year I read about just taking your pill and continue on. I haven't found that it is that easy.
I do get exhausted and don't have the drive I did before, but I have been learning to live with it and also quit my job as my brain fog cost me money in the end to work to fix mistakes... Long story-Lol
I am looking for a part-time job to have some income, my husband is starting to be supportive but took a while for that. Good luck and be positive.
It won't go away but we can live with it's ups and downs....

I'm sorry for the struggles you're facing. I do not have Addison's Disease but my husband does and was diagnosed about one year ago. From an outside perspective I think it is a difficult thing to cope with but it is "doable". I know my husband had a very difficult transition after he got out of the hospital with his first crisis and official diagnosis. It was actually a transition for the both of us. When we left the hospital we were both told that he just has to take a few pills and he will be fine. Of course we were grateful that he can live life and do all the things he loves but we were never told about some of the common symptoms of his diease. This last year has been a huge learning experience for the two of us. I know with my husband he struggles with the fatigue quite a bit. We joke that between 10-11:00 p.m. his body is done and it's time for bed regardless of what we are doing. He has experiences some moodiness which is related to his meds and some leg pain on and off. Again, do not live with this disease but I watched a loved one go through the ups and downs. It's important to keep your head up and stay positive. Also, communicate with your husband how you're feeling that day. Because my husband spoke with me openly about how he was feeling physically or emotionally and would freely answer questions, I feel I was able to be a better support and learn more about the disease. I really believe it's a difficult transition and learning experience for you and your husband. You guys are in it together! I hope things get brighter for you.

PS: Always keep yourself hydrated and yes to the gatorade! I always keep bottled water and gatorade stocked in our fridge.

Thanks for the info, and you are right you have to be in it together we have been together for 35 years, he is with me and he is trying to learn everything he can, With the type 1 diabetes I can not take gaterade I am still trying to find a drink similar that does not have all the sugar and carbs, not an easy find. I still feel like some alien has invaded my body, my minds wants to do everyting but when I try my body is not willing and it stinks. i kinow that with time I will find my balance but it is hard to go from being very active to not working any more and being so tired and weak, feeling sick to my stomach all morning. I plan to go on with dignity and no whining for my husband. I am usually an upbeat person

Drink pediatric electrolyte, no sugars. I am pre-diabetic.