Yes, I don't know if it is part of Addison's or not. I haven't found really anything that is helping me with it other than pain medication. I am sure I have multiple reasons that I am going though it right now. I have been told that lack of natural steroids can cause joint pain.

As Addison's is usually auto-immune in nature, I look at the pains I have ( my right clavicle is swollen and sore at the moment and has been for about two weeks) as just more inflammation. It goes away after a while.
Sometimes I feel like Rosanne Roseannadanna of SNL " It's ALWAYS something!"
good luck with all of this

Hi. Thanks for reply. The weird thing with me is I dont have a autoimmune disease, Dr.s really dont know what caused the adrenal problem. It is a symptom of AD I just wondered if its ongoing or goes away after awhile. I hope so it seems like symptoms are hanging on though. Thanks again. Take Care

I agree with the inflammatory nature of AD, but I have a new perplexing one. I was forced to wear heels 2 wknds ago and my back has been an absolute mess ever since...new pains, from ribs to hip. Oddly, my feet & ankles are fine!? It's been 10 days! Granted, I prefer comfort over appearance, but one night of heels can do this? Next time I am definitely sticking with my clogs, or preferably remain barefooted, regardless of style!!

I have been engaging in a habit I normally don't do, ever since my high heel trauma - watching tv. I'm not happy with my tv 'thing' but my point: Joy Behr said she had an ectopic pregnancy & her pain was isolated to her shoulders. It does seem odd, but hormonal involvement is definitely associated with joint pain. Hormonal craziness, esplly low cortisol = inflammation.

Just a thought, but I believe symptomology is quite similar, regardless of whether AD is Primary (autoimmune), Secondary, Idiopathic...

Hey Roseannadana, aka Camckinnon,
You're too funny..smiles are always appreciated, so thanks! I hope your clavicle is better?

PS-Cherry juice (not from concentrate) is a GREAT anti inflammatory.

I have also have edema but fish oil works like magic! I have been having a lot of back pain and wonder if long term steroid use is causing arthritis...

I taking fish oil but stopped taking maybe I need to start just trying to figure if its a adrenal issue are something else I might have Lymes disease are from female hormone imbalance. My ankles knees wrist and even hand joint hurts had trouble with this a few months ago and it went away then it came back. But it doesnt seem to be a complaint for all AD pts, so Im wondering if it from something else. Thanks u for you input. God Bless Darla

i have a lot of joint pain and swelling, and it was diagnosed as a separate autoimmune disorder. I am still not sure it is not an offshoot of AD because it seems to get better when my other symptoms improve. Mobic and Plaquenil help. It sure is a nuisance, but it's another thing to be grateful for when the pain subsides and I can fit into my shoes and not have the whole bread baking thing going on around my ankles and drooping over my shoes, as Chris Rock refers to it. I still think my main problem may be that I am slowly transforming into my grandmother, with the whole floppy underarm thing that could kill a toddler if you start swinging your arms too energetically.

As part of my symptoms before being diagnosed I had extreme joint pain. It literally felt like I had aged 60+ years in a matter of months and I could barely move at times because of the extreme pain. Since being on steroids the pain is pretty non-existent, however I do get "episodes" of joint pain but I have noticed that it mainly comes when I have been active and am nearing my next dosage (perhaps my cortisol is really low).

My understanding in talking with my Endo and reading about Addison's is that joint and muscle pain is part of the disease. It will affect everyone differently and I suspect age, health, length of being on steroids, and such all affect the severity of it and so on.

Thank you Kristen. Im trying to figure out where its coming from. THe symptoms come and go. My internist wants me to take 3 weeks of antibiotics thinking I might have Lymes disease and my husbans thinks Lymes disease is my problem too. I keep telling him it can also be from adrenals IDK. I am praying about it I hate taking all those antibiotics for nothing but maybe it would help. My pain had went away for about 2 months now it came back full force. Let me ask you this did you have join swelling and tender to touch with it as well????? Thanks Kristen appreciate your response. Darla

Yea Im 40 years old and I feel like Im in a old ladys body. I dont like it. Darla

I honestly don't remember if I had any swelling but everything was tender to the touch. I was so miserable and trying to take care of a 6 month old it's all a blur.

Good luck Darla!

Thanks Kristen I appreciate it. Darla

Since I can't tolerate the after taste of fish oil capsules, I have salmon 3x/wk & supplement with Flaxseed Oil 1000 mg., on alternate days. I've also found a few upper & lower body exercises, using light weights or resistance bands, helps greatly. Granted, I have an occasional day when I have to really have to push myself just to get started, but the end result is well worth it. There have even been moments when I've been much too exhausted to get up & go, so I've done leg lifts with ankle weights, in bed...desperate measures to keep in motion. I guess we have to be creative, in order to accommodate our (not so) gifted AD bodies???

Thanks lunarphase so you have joint pain too. My DR want to treat me for Lymes disease and Im trying to figure out what to do because I know you can have joint pain from adrenals too. Good for with with the exercising awe I always did before and havnt been able to yet because so tired but I hope to be able to once again soon I hope. So please tell me is your joint pain ongoing or does it come and go??? I also have muscle pain with it. Do You???? I was taking fish oil caps and holistic DR took me off but I think Il take them again and see if it helps. Thanks for input I appreciate it. Darla

Darla,
Why did your holistic take you off fish oil? I know about the possibility of mercury contamination, dyes, etc., but there are safe supplements. I'm curious, since it did help you.

My pain is chronic: disc herniations, lumbar hemangioma, muscle spasms, stress fracture...the whole package. Maybe I've become accustomed to the pain & accept it as is? I just don't know. Sometimes I use a heating pad, which helps to loosen things up, before I exercise. At times, I separate my mind from my body & just go...sounds odd, I know :)

It's a vicious cycle...exercise helps tremendously, but it hurts just to get moving. Every little bit helps, however little it may be.