Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Hello everyone, you might remember last year June 21st 2013 I had operation, for posterior and anterior repair. Operation, went well. I considered it a success. I was told I could go to the gym 6 to 8 weeks later no problem. However I waited until November this year the 29th. But since going to the gym I feel it has re- occurred The surgeon actually told me myself that it would be okay to do what I do at the gym. However I feel things have come undone I feel and I'm waiting to see the surgeon again in April. I would like to know is does any one of you out there with Addisons incurred a crisis whilst in pain.? I can go into crisis very quickly due to the pain certain times, just wondering if it's my imagination or whether it is because I've got Addisons. Love some feedback on this thanks very much folks.Lezleyheartstoyou x
I hope you feel better soon.
I take ginger and cinnamon, and a bunch of things that my mito doctor recommends, such as creatine, B2, and coenzyme Q10. I also take sumatriptan for the migraines, but I can have two a day at times, and they only give me pills enough for about eight episodes in a month. It helps shorten the episode, especially if I take it as soon as my vision starts getting weird.
I agree with Lynn that the pain can be different every day, and the intensity can be different too. I have fentanyl patches , which decreases the pain, but I also have stronger stuff if those don't do much. i hate the idea of having to take any kind of meds, especially pain med, so I try really hard to stay hydrated, avoid stress, and not overdo. But that is sort of the opposite of what most women's lives consist of that it is hard to avoid being symptomatic. The worst days are just lived minute by long minute, with the pain being so intense I wish I could scratch a hole in my body to escape from it. I up my steroid dose, force myself to drink lots more liquid and just try to tough it out. One thing my neurologist recommended to help keep your electrolytes in balance is Nu'un. They are tablets that dissolve in liquid and come in little plastic tubes. I keep them in my purse and car. You can buy them on Amazon. I hope your visit went well and that you get good pain relief.