I had a lot of hair loss before I started my medication and it continued probably through the first couple months of taking my HC. After 7 months of being on medication my hair is finally starting to get some of it's thickness it once had. I would guess it's a normal part of AD, however it could also mean that you have some other hormones off, for more detailed info I'm sure one of the other members will chime in as I'm not as familiar with this as they are, but I remember reading about about it at some point. I'm sure if you'd do a search on hair loss in this forum you'll find a handful of discussions.

Good luck!

Since being on HC my hair has definitely thickened again. My hair was falling out prior to meds. and had lost its luster. Now I feel my good old hair is back. I hope this happens for you real soon. This just seems to be one of the many wonderful phases of Addison's.

Good luck!

Thanks Kristens and webber. I did look back at an older post about hair loss, most people did say it will come back, I hope!! Some where trying different hair loss shampoos etc, but if it is hormonal or due to medication change I don't know if it will help but will give it a try. I go back to my endo in 3-months so will write it down to remember to ask her about it. FYI I went to my GP yesterday to ask for an injection kit as we are going camping in the mountains next month and he said no because he doesn't know enough about it. My endo is in a city 4-hours away???? I did order my medic bracelet and it will be here soon. Thanks for your info and help.

I have VERY fine hair .... like a child... when I first started HC I also experienced hair loss.Additionally I lost almost all my " secondary" arm pits, legs, and elsewere.... My endo did a hormone profile and discovered that I had no testosterone ( which women produce in the adrenal gland). I have been on testosterone troche' ( melts under the tongue) for at least 10 years now.. and I have hair.
Good luck on resolving this issue!

RB - call your endo, I was able to get an injection kit by just calling my endo and asking to talk to his nurse. His Nurse called around until they were able to find a pharmacy who would stock it for me (I live in the boonies country and most pharmacies say the injection kit is for hospital use because they are challenged...being very polite here), but anyway my endo and his nurse were very helpful and even explained over the phone how to use it :).


Good luck!

Oh yes I had severe hair loss. I still loose some but it did get better when I increased my thyroid meds. Have you had your thyroid checked? If not might want to do that. Darla

Hi rbtowing,

I swear, exactly the same thing is happening to me! Recently i've noticed all the things that you have mentioned, when I wake up in the mornings, my bed is covered with hairs, loads of them come out when I brush it and wash it. I don't know what to do about it, but i'm glad somebody else has it too. I was wondering if it was some kind of reaction to the HC?

-Claire.

Hi, I started hair loss and discovered it was my thyroid. My internist did a Reverse T3 and found out the Armour thyroid I was on wasn't allowing the HC to be taken up properly so he switched me to Cytomel. I now have steady energy, my hair is falling out less ( I was just switched recently & it takes awhile) and I can take normal doses of HC instead of 40 to 60 mgs daily. I am so happy because for the last year or so my energy was bouncing all over the place and I had to take so much HC.
I hope this is helpful.
Sunshine

Hi Sunshine, thank you for your reply. I am on Levothyroxine for my thyroid I think it is a synthetic one,I don't have a thyroid as it was removed years ago. But I do have to regulate it with meds, so maybe I will bring this up next time I see my endo if my hair is still falling out.

Hello sweetie, well i was searching on addison site for hair loss, well, im on thyroid meds, and i am a addison 's also, have been since 2008, today and the last few weeks my hair loss is awful comb it, hair loss, wash it hair loss, touch and run my fingers through gently and hair loss its not nice at all. i will see my endo in sept ( if i have any hair left by then ) and ask the question.Im thinking it;s more to do with thyroid than anything, as i remember having hair loss before i was also 1 yr later with addison's. please make sure you get your injection pack, used mine twice, but, from my experience if you are in need of it, you could;nt even reach for it never mind use it. to much of effort to think about / use it. plus even the main people at hospital, don;t know what it is either, i have to explain, have you found that?but as far as hair loss i read it thyroid so i'm going to increase mine my self after all we have to live with it, no one else would understand that would they, can do to much harm to take a little more. take care XXXXXX

My hair gets really dry when my medications aren't properly balanced. Its generally how I can tell something is off. Once I get back in balance my hair looks better within a few months. Weird!!!!

Hi RB,
I had the exact same experience, when I began steroids. It was so distressing & I was much too ill to logically figure things out. Ultimately, I switched from generic to name brand HC, a HUGE difference. Along with the benefit of hair-specific supplements, within a few months my hair stopped falling out. Now it's fuller than ever & actually outta control.. it literally won't stop growing!

I believe when (synthetic) cortisol is re-introduced, our bodies go into quasi-shock, with hair loss being one shock-like response. Once your body adjusts, your hair WILL stop falling out.

Along with achieving appropriate cortisol 'balance', Biotin is really great for healthy hair. Try not to worry. Your locks will return, maybe better than ever before!

well I increase my thyroxine from 125mg to 150mg and that's since my last update 29th june 2011 its now 15th july 2011 and finally my hair has stopped falling out, maybe now 10/15 hairs a day instead of handfuls ans jamming hoover with the stuff, must say i feel a little more with it to, slightly more energy, even though, blood tests say 125mg Thyroxine was adequate havent said to Endo man yet as it.s sept appointment. BYE THE WAY does anyone know what floudrocortisone does? does it cause joint pain, cos I.m suffering wicked anyone got feed back please take care everyone. Lezleyxx

rb,
From what I understand most doc's don't do a Reverse T3. If you ask them to they would but a lot of doc's don't know the reason to use it.
I am lucky in that a couple close friends are doc's so they keep an eye over my shoulder.
Sunshine