Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Welcome, so sorry to read of your husband's dx; however, happy you found us. Also, pleased that he is chemo only. I was dxd at 48 with three young daughters; 8, 10 and 12 three and half years ago. November will mark the huge milestone of three years post chemo where, according to my med team, I will be deemed cured-by the grace of almighty God.
Along with intermediate risk, your husband has very low blast percent on his side. Normally, anything below 20% is considered MDS or CML but it seems you have an aggressive med team who caught this quick-very excellent. High blast % at DX is another contributor to poor prognosis. Mine was relative low as well-low 30s.
You have every reason to be optimistic, AML is curable, your husband achieved remission from one induction (not always the case), based on the timeline provided he seems to be sailing through consolidation (also not always the case). I took twice as long due to ubber slow platelet recovery.
If you have a faith in God, I highly recommend prayer from every source available. I will add your family to my family's prayer list. Also, I recommend limiting your internet searches especially on AML stats. Like many of us, your husband is much younger than the average age at DX 70s so the survival stats are very skewed. The only stat that matters is yours.
Please read this amazing article on cancer stats-
http://cancerguide.org/median_not_msg.html
As far as juicing, I am assuming hubby is on a low microbial diet meaning no fresh fruits and vegetables due to compromised immune system. Before you add any of these I would check with his ONC. Once I finished chemo, I began and continue to this day drinking a green smoothie everyday. 3/4 container of organic baby kale, chi seeds, flax seeds, blueberries, mangos ect. I also drink a high impact juice drink called galaxy everyday. In addition I swear by curcumin supplements. I have provided a link with tons of curcumin info from the lymphoma leukemia society support group below;
http://community.lls.org/topic/15679-curcumin-for-aml/?hl=curcumin
My quality of life is outstanding post AML. I teleworked during chemo. After treatment, I went back to work full time plus I teach masters classes in the evenings. I have traveled extensively with great success. There is life after AML, I promise.
Praying for you
Blessings,
Julie
Debbie
I haven't been on this site in a while, I'm glad i checked in today. My husband was diagnosed the day before his 39th birthday. He had M5 normal cytogenetics, NPM1+ and FLT3-TKD+ intermediate risk. His AML team wanted to do a sibling transplant but his did not match. Started the process of finding an unrelated donor (they found over 60 matches) but then they decided to hold off and do chemo only (4 consolidations) and wait and see if he relapsed. He finished his entire treatment in 5 months. He had 85% blast at diagnosis and 2-3% after his induction. He was responding so well to the chemo then docs didn't feel like it was worth the risk of a BMT in his case. Now for the part you want to hear......This was 4 years ago and he is still in remission! He is like Julie and feeling great post AML. Sorry you are having to go through this nightmare......but there is light at the end of the tunnel.
:) The other Julie
Blessing to you and your family