Acute Myelogenous Leukemia (AML) Support Group

Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.

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Leukemias
/ Acute Myelogenous Leukemia (AML) Support Group

infection in the girchaun heading back to hospital

jmysray
jmysray
Talked with his mom said he is in alot of pain the nurse says if he says something strange she is to call the nurses the on call doctor was in is concerned went to make a call to see what else they colud give him. I just got out of shower and need to get dressed and head back very worried.
Noodle65
Noodle65
I am not sure where Jamie's infection is but I'm praying for it to clear.

Jullie
mtnbyker
mtnbyker
Sorry to hear this. Prayers sent.

Dave J.
CajunGirl2015
CajunGirl2015
Praying for you and your fianc!

Debbie
jmysray
jmysray
The infection is at the site where the first incission was made to install the girchaun (chemo port) it was removed last night by a surgeon in the room, he is now swollen up into his neck. His fever went down around 3am to 99.8 after several ice pacs but is now creep9ng back up last reading at 11:15 was 101.3.
dbrowncsuaedu
dbrowncsuaedu
The good news is that they found out just exactly where the infection was, so they can treat it. Sometimes these fevers go on and they just cannot figure out what is causing it -- hard to deal with it when they do not know. The people that I have known who have had infections of this type (not related to AML) have told me of extreme pain. So, that probably explains his great distress. They should be able to get it under control and if they have not sent him to the ICU then he is probably not in great danger. The ice packs are to get him down so they can give him a transfusion -- that is another dilemma that I got in several times -- needed blood to fight the infection but their rules so no blood unless under 101 or something like that. There were a few times we got them to bend the rules and look the other way. It is a balancing act -- need blood go get the infection and fever down, but cannot give blood until the fever comes down. Somebody needs to step up and make a decision -- perhaps you can sign off on something to bend the rules a little bit. Hang in -- this all goes with the turf -- Jamie is going to pull through it -- he is a tough cookie -- dave
jmysray
jmysray
Update they have managed to get his fever down when I. Left this evening he was at 99.8, at its worse his tem got to 104, lots of ice bags and no covers even though shaking got it down, this didnt happen until early this morning, they gave him morphine for the pain of the removal of the girchaun and the packing of it as they want in to heal from the inside, he is to have new packing again tonight to fill the tunnel as it was explained to me.
jmysray
jmysray
Almost forgot thanks to all for the well wishes.
xuelan
xuelan
Do not worry,

Port infections are the bane of the AML patient. After I got my transplant and all was going well, I got a port infection. Fortunately, they were going to take it out anyway and so I went home with nothing. Ports frequently have to be removed for those reasons Generally, as soon as the patient is over the infection, being treated by vein, another port is inserted. There are also things that they can do with alcohol influsion (etc.) to maintain the cleanliness of the port.

Remember....speed bumps....they happen, so slow down and keep riding the wave. Jamie will get over this and you will too.

Cliff

BTW - I never hear of anything called a GIrchaun? Is that a brand name?