They are absolutely looking up. Once her body starts to accept the transfusion and make some of her own, all system go. I am so happy for your family and especially Jo! I would welcome the bmb because it is the only definitive proof. I just knew every cycle I would earn one and it became reassuring. Praise God for answering pray

Blessings

Julie

This is good and it is good for all of those out there who are struggling thinking that the numbers will never come up. It seems under normal circumstances they always do. There are, of course, exceptions, but they are very few and far between and there would generally be some other known cause that would be evaluated (or at least should) well before the decision is make to go into chemo.

Enjoy the weekend -- things are looking GOOD!!!! -- dave

Hi Cajun,

Amy word on Jo's bmb, hasn't it been a week. Praying all is well. Please give us an update.

Blessings

Julie

Great news!

Happy Easter everyone.

Cliff

Debbie,

Checking in to see what the results of Jos bmb was. Praying for a clean biopsy

Julie

We still have not heard regarding results of her bmb. Hopefully today. Her lab counts last Thursday were down again in all areas but not so low that she had to get any transfusions for the day. They told her that she would probably have to have some today when she goes for lab work.

I know you guys say this is normal but the ups and downs of the lab counts are driving me crazy. She is learning to take it in stride and not let each drop of counts send her into a tailspin. Although this one was a little harder to take because it seemed that the shot had worked and her blood had finally started to produce on it's own.

I am so anxious about the bmb results. Do they usually take this long? She had it last Friday! I'm assuming no news is good news but surely they could have let us know something before this past weekend.

They should have given you the results by now. I would call them and check in so you dont have to keep waiting and get you both some peace of mind. With as painful as that proceedure is they should be jumping through hoops to get you the results.

Dave J.

Julie,

Since I know you have the inversion 16 also, how long did it take for you to get your bmb results? My sister called MDA again this afternoon and was told that hers is still not ready because the inv. 16 takes a little longer. She seems content with this answer but I am imagining all kinds of terrible things. I remember when she went home after induction and they did the bmb prior to her leaving, the results seemed to be back within a few days. When she left the hospital Friday a week ago, they told her to expect results by mid to late week. (that was last week) Just curious to see if yours ever took a long time to come back. Just a worry wart sister I guess.

Debbie,

I have never had to wait more than 24 hours usually les to get the preliminary no blasts. I have had seven. The only time it took over one week was when I had the initial diagnosis to determine the cryogenic and then at end of treatment. I still was able to get the preliminary no blasts the next day. This seems so strange to me and very cruel.

Praying for a clean bmb

Julie

I wouldnt worry about a bad result just because it has taken some time, they may just be backed up, nothing more. There is no reason for good news to come faster than bad news. If anything i would think the opposite. They would be wanting her back now to get started with treatment if it was bad news. I have had 6 of them, i think the longest wait i had was 9 days. I am flt 3 but i dont think that matters either.
Keep calling, the squeaky wheel gets the grease. My prayers are with you both.

Dave J.

Debbie,

You are a great sister. I do not have a sister but I tell my three daughters how blessed they are to have each other. Your love, care and concern is very apparent. I am so sorry you are having to wait such a long time for the results. I agree with Dave-squeaky wheel :-)

Praying for a clean biopsy,

Julie

Still no bmb results! Her numbers also have dropped again and MDA has pushed back her appt. to start chemo again another 10 days. Her numbers were not so low that she needed transfusion (which was a good thing) but dropped instead of continuing to climb. The highest her platelets went was 17 before starting to drop again. Her WBC is still good enough that she doesn't have to wear a mask unless she is around someone that she knows is sick or is coughing and such. So frustrating!

Debbie

I am so sorry you and Jo are having to suffer through this. It has almost been two weeks. I'm so sorry about Jos platelets. They are fickle things. She has had induction and two rounds of intense consolidation chemo. Her bone marrow may be very sensitive to the chemo which was my situation. Let's get past this bmb result and see if they lower her dose. It sounds like md trial is to get the chemo in over an eight month period. I took nine months due to slow count recovery. Praying for good results

Julie