Acromegaly Support Group

Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death. Join the group to discuss symptoms, diagnosis, and treatments.

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Endocrine System
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vision problems

UlrikeCT
UlrikeCT
Hi!
Did any of you have this? Eye lid twitching and nasal step peripheral field defect?
I have a 15 mm pituitary tumor. Saw my eye doc today again for field vision testing. The field defect he said is nothing to worry about and the twitching isn't anything, he asked me how much coffee I am drinking.
He said to come back in 6 months to repeat field vision testing.
Thank you
Ulrike
Harmony22
Harmony22
Hi Ulrike,

I can talk only about eye lid twitching. I started to take magnesium and after a few days has twitching stopped. Try not to worry too much.

Take care,
Harmony
Berthe
Berthe
Hello Ulrike,
Also had eye lid twitching after surgery. Took magnesium/B6 and it stopped after a month.
Coffee, corticoids and vitamine D intake interfer with magnesium absorption. At that time, was taking the 3 of them.
B6 helps magnesium to be fixed.


Take care,
Berthe
Berthe
Do you have cramps in the legs ? It's also a sign you need Magnesium.
JohnD1
JohnD1
People who have migraines also have a tendency to magnesium deficiency. Be aware that magnesium can give you loose stools if you take too much too soon. Also, if you take magnesium with calcium, the calcium stops you absorbing the magnesium.

John
UlrikeCT
UlrikeCT
Hi!
Thank you everybody for responding. The eye spasms don't really worry me, its the peripheral field vision loss. No, I don't have any symptoms of low magnesium
Again, thank you!
Ulrike
JeriTX
JeriTX
The vision field is the one that concerns me. My doctors test that every time they see me, even though my peripheral vision is BETTER than normal. They watch it because the tumor can put pressure on the optic nerve and damage it. It totally depends on the location of the tumor. (My tumor before surgery was compressing the optic nerve.) Which dr. told you it wasn't anything to worry about? Has a recent MRI shown whether or not the tumor is touching the optic nerve?
UlrikeCT
UlrikeCT
Hi Jeri!
I would have to find my 2 latest MRIs to write exactely what it says. This is my memory: The adenoma is filling the sella turcica completely, size 15x12x10 mm, adjacent to the optic nerve but not compressing it.
The eye doctor is the one who told me that the peripherial visual problem is not related to the tumor.
I was scheduled for surgery Sep 09, then the endo said I should not have the surgery since my GH and IGF was actually below normal at the time.
deleted_user
deleted_user
I did have eye twitching myself, which went away after doing some supplementation of various types. Here's some ideas:
are you on meds? like Sandostatin LAR? these are known to reduce B12 levels, so may be good to have your B12 level checked. low B12 can be the issue. also, low B6 level may be a problem. you can just go ahead and supplement B12 and B6 sublingually (get the No Shot brand at health food store) and see if it helps. if you supplement capsules of B6 separately, be sure to use the "P5P" version of B6, not the other type.

good luck, sunny