I was recently diagnosed with Acromegaly in October of 2017. After being tested for what seemed like everything under the sun, several doctors came to the conclusion that I not only had this, but that I had to have surgery to remove my pituitary adenoma (we call him my little buddy; had him for about eight years). Now, this was a little surprising to me as I'd never had my test levels come back so elevated in the past, but here they were, coming in at 538 (average was 200 for a woman my age).
I've been scheduled for a surgery to remove this thing. I'm not so much worried about the surgery, you know? I mean, it is what it is, but what I AM worried about is, will I ever kind of go back to looking/feeling like I did before? Over the past six months, I have lost a significant amount of hair. We're talking like I spend a lot of time wearing headscarves and sometimes even wigs. Has that ever happened to anyone else and, if it has, does it ever grow back? I'd like to not think of myself as a vain person, but this is just too much.
Hi all,Was diagnosed in a very strange way with acromegaly, I had a appointment with a neurosurgeon to have a back surgery, and my neurosurgeon walked into to exam room and just looked at me and said I think you have a pituitary tumor. From that point on the back surgery was not even in the conversation, he figured out that I probably had acromegaly for at least 15 years or more so he set me for...
I am convinced I have acromegaly but don't know where to start. I am desperate for somebody to look at my photos and help me. I feel really on the edge at the moment.