Acromegaly Support Group
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death. Join the group to discuss symptoms, diagnosis, and treatments.
My consultant endocrinologist phoned to tell me that the scan was unsatisfactory, because it looked as if there were metal fragments left behind from surgery. This seemed amazing to me, especially since I'd had clear scans before.
On further inspection, I was advised that the "metal fragments" turned out to be "surgical packing" left behind after surgery. Apparently, this is normal and in most people it naturally dissolves over time. In my case, it still seems to be there, although why it wasn't commented upon after previous scans is still a mystery for me. I have asked for more information.
-Jon
Jon I am sorry you and this bad news...I hope you are all recovered soon and this has an easy fix!!
An addendum to the report stated, I am now able to compare the MRI scan with the previous scans... On todays imaging there has been no significant changes in appearances. I cannot be sure due to the artefacts but I suspect there might be residual tumour adjacent to the right cavernous sinus that can be the cause of the patients symptoms.
A bit of a shock to learn that there may be residual tumour. Also, still no satisfactory explanation as to what the foreign bodies in my head may be. At least they havent started talking to me... :(
-Jon
However,I still found it worrying and would have liked a fuller explanation, some six months after I had the MRI scan.
-Jon
My endocrinologist wrote that the report by the radiologist about my MRI scan was self-explanatory, but unfortunately I dont understand it. Hopefully I will find out more at my next consultation.
The artefacts in my head may be surgical packing, which is used to fill the gap left inside the head following surgery. In my case, the packing used was muscle taken deep from inside my right thigh (that was painful). It is known that sometimes these fat or muscle pads can become infected. Some surgeons dont pack the pituitary in this way anymore. One endocrinologist I know (not in the UK) wrote to tell me that their neurosurgeons now use the bone/cartilage removed by the ENT surgeon and glue it back using a little bit of Lyostypt glue. This completely closes the operation site and the glue then dissolves soon after surgery.
Regarding my latest MRI scan, I am more puzzled than anything else. I hope to know more soon and will report back to this Forum.
(JeriTX, I am so sorry I have filled your discussion thread about scar tissue with news instead about foreign bodies in my head! It seemed to be a sort of related topic. I feel sure youll forgive me. Everyone on this Forum seems very nice.)
-Jon