Being physically fit is always an advantage. Your body is probably able to better handle to affects of excess growth hormone.

That being said, the fact that you appear to have a pituitary tumor that secretes excess growth hormone means that that you have acromegaly. It is what it is--nothing borderline about it. However, the good news is that the size of the tumor is small and the amount of excess GH is relatively low; so, the affects on your well being have perhaps been less than for someone with a larger tumor and/or higher GH level. In combination with your fitness, this means you will be attacking the condition from a position of strength. And because you have taken care of yourself, you may have enjoyed an earlier diagnosis than some of us otherwise less healthy individuals whose symptoms were attributed to weight or age or gender or lack of fitness.

If you continue to manage your health the way you have in the past, you're sure to do well with whatever course of treatment you pursue!

it's great that you're seeing a specialist, good luck to you. Yes, it is possible that your tumor is only generating GH that slightly more than normal. That would result in the blood results you describe.

please don't be upset, given your situation, it sounds like you have such as great chance to beat this condition and get complete cure... or just manage symptoms and have a good life that's unaffected. I don't know how many symptoms you have or how bad they are... but if you have little to no symptoms, perhaps you can consider just taking medication rather than doing surgery. on the other hand, surgery to take out the microadenoma may give you complete cure. There are pluses/minuses to each decision and it is a very personal one.
Wishing you the very best of luck.

I was physically fit...I did triathlons etc....We figure my tumor was growing for 15 18 years ...I had no idea... my "fitness" de graded slowly over time... I imagine if I had been tested early n it woul dhave been hard to detect as well...when I had surgey I had a Macro ..the surgery helped me...my Igf-1 is just in the range..et checked next week

Hello Juanitoc,

I have about same level of IGF-1 as you and same size of adenoma (but higher GH). I certainly don't feel borderline. I feel acro symptoms every day.
Medication or surgery can improve your everyday life.
One thing I did before the first apointment with an Endo (after diagnostic) was writting a list of all weird symptoms I had for last years, big and small, from the top of the head down to the toes and gave it to the doctor.
I thought I was "almost healthy", but it ended with no less than 15 items on the list!
Then later, when you will get apropriate medication, you can read it again and check what improved exactly.

Take care !

Thanks, Berthe. I guess I'm unusual in that I don't have a lot of the symptoms associated with this disease. I did have low testosterone, but that improved a lot after I went off Lipitor. I've had occasional pains in my fingers that come and go. I have had fatigue and occasional muscle weakness. I've noticed that the fatigue is worst in the late afternoon and early afternoon, and sugar really brings it out--especially white rice if I've eaten something with that in it for lunch. For a while there, I thought I might be diabetic because I would get dizzy spells and drowziness after eating the white rice. Apparently, it was just my growth hormone surging, as the tests bear out.

I think the thing that made my Endo first suspect I might have this is my face--I have a large nose and somewhat sharp, angular features with that kind of hangdog look a number of extreme cases seem to have. But my hands and feet are normal. The disease seems to have manifested itself in some ways but not others, at least currently.

I had diagnostic in 2008 with 9mm adenoma (after surgery, it is 6mm).
My feet began to be a bit too wide for the shoes in 2004, and only in 2005-2006 I had to buy bigger shoes.
So you may be at an early stage, this is excellent news, you can catch it before it happen (bones cannot shrink).

Before that, symptoms began in 2003 with fatigue. People say "oh, you look tired !" even when you come back from vacation. On photos, you always look tired. And something changed in the smile. And became more sensible to stress.
Oily thick skin and more hair. Snoring. More often colds, who lasted for weeks. Deeper voice (hard to sing). Bigger tongue and more salivation. Sweting after meals and at night. Vision out of focus sometimes, and sometime not.
2004 : pain in joints / bones and more fatigue. Went for 3 months to live in the country side, hoped to be out of Paris will solve it, with healthy excercise and food. It didn't.
2005-2006 : sexual hormons went low (periods), sleeping hours became erratic. More fatigue. Went to live in the country side 1 1/2 years for same reason. Didn't help.
Etc...
It was a slow process and could be explained by aging, nothing important...
Only by 2007 I began to ask for medical advises, feeling that something was realy abnormal.
Don't "get freaked out by the diagnostic" : you knocked on the right door early, it will be easy to manage.

Sorry for this endless message.

I'm in the same boat, but have been showing symptoms for at least five years. My IGF-1 doesn't usually go above 400 or so (30 years old). My glucose tolerance tests have never been anything but blatantly diagnostic - high GH after glucose load. I also had one surgery to remove a very small tumor. Didn't help. Now look at my meds in the fridge every day and still deciding whether or not to open the box. If I was told my condition wouldn't get any worse, I'd remain untreated. Alas, that's usually not the case and I probably should get started.
In other words, yes, I think it seems you have acro. Denial can last a long time and be detrimental to your treatment plan (exhibit A: ME). Sounds like you're in good hands. I'd go ahead with the surgery. You'll get a DX - that'll be the first line of treatment.
Yes, your fitness makes a big difference. Hang onto that as long as you can!
HUGS,
K

Well, now I've been to see an acromegaly specialist at Cedars-Sinai. He said he doesn't think I have it based on my lack of symptoms, but he is concerned with my glucose tolerance test results. He said it could just be a normal uptick after a few hours that is sometimes seen. Plus, he's concerned about the reliability of the testing results.

So he wants me to re-take the test in his lab under the most stringent of testing conditions. I suppose if the results repeat themselves he might be more willing to concede I might have it. He also wants me to go off cabergoline for three weeks prior to testing to see what happens with my prolactin levels. He also said that it could just be a nonfunctioning tumor, in case I suppose they'll just leave well enough alone.

Oy, more testing. Just what I want. So tired of all these blood tests and being told different things by different doctors all these years.

Good Doctor near Sinia is Dr Friedman. Can you get in to see him? He uses Sinia. This is if you are dissatified.
http://www.goodhormonehealth.com/

Im going to Dr Ludlam in Seattle Washington. He is studying Acromegaly as well as Cushings ( I have that.) I had a GH Tumor removed in Jan 2010. He is very interesrted in my Acro. Is doing studies on it. I only had numbers like you,
too
http://72.5.217.78/Services/Neuroscience-Institute/Neuroscience-Services/Pituitary-Services.

I'm not dissatisfied at all, just tired of hearing different things from different doctors. Dr. Carmichael at Cedars-Sinai was very nice. He asked me to participate in a longitudinal study they're conducting tracking people with pituitary tumors over years.