i was still going to the gym even with having acro, just pace yourself my friend and see what the endo doc says
good luck

Like Swampy says ,pace yourself dont push yourself any more than usual until you see the experts.I never been told not to exercise,we need to keep fit like everyone.
before I was diagnosed I tried to beet the growing fatigue by cycling.It didnt work but at least I was as healthy as poss when I found out the reason.
good luck , if you've got a good endochrinologist treasure him/her

Thanx guys,

I saw the endo thursday, on the exercise he said dont do anything different so thats great!! Chippyd can u tell me how your fatigue is now?

There could be could be a few sources of fatigue.....make sure you check your prolactin, cortisol and all other levels because these tumors often secrete more than one hormone.

Mine cosecretes prolactin and hgh. The prolactin suppresses testosterone which makes me feel weak and the excess igf is also a source of fatigue...

Lowered levels of both of these will help a lot....I believe that exercise is VERY important for your overall health...it is what saved me for many years before my acromegaly was finally diagnosed correctly....

Good luck, Ledgy

Acrobully, the answer isn't that simple unfortunately.....the Endo may say don't do anything different but that's not a get out of doghouse card with your wife now is it.......much depends on what kind of shape you were in to begin with, to how much you have been effected by the Acro, how long you've been Acro without knowing it, what the hidden damages are.......this beast strikes us in many different avenues..... fatigue is the body's way of telling you something's not right........to much physical stress, not enough reserves, unbalanced hormone levels, etc., etc..

I don't think anybody would say give up on exercise, but you do have to listen to your body better now, especially as you get older or the condition changes........remember the pituitary gland is kinda like the traffic control officer of the endocrine system.... when it's screwed up there's a loss of order and normalcy....

I've been battling the beast for 11 years now, have had 2 surgeries and 1 gamma knife.... I've been on daily shots for 8 of those years and monthly sandostatin lar shots for the last 3 years.....prior to my diagnosis in 2000, putting 240 miles on my mountain bike over a weekend was nothing.......now I would be doing good to get in 5-10 miles, especially today.........maybe tomorrow will be a better day.

Each day is different for us.....some days are great, some not so good and some better just spent staying in bed.....fatigue may not be a factor today, you may be able to play a match with no problem.... that's not to say 6 months from now you maybe too fatigued to run across the field once let alone up and down the field a number of times.......

Acro is an exercise in adjustments to the current conditions.........which may change during the course of the day.......

the rule of thumb is listen to your body and remember due to the Acro it doesn't recover like it used too........there are many contributing factors to take into consideration and for each of us it's different......trust me, if the football is too much for your body, it will let you know in no uncertain terms that you can't ignore..........you'll learn.... until then, I say go for it,..... you're endo said don't do anything different ...... what does your cardiologist say or have you asked him........Acro can and often times does effect the heart, blood pressure, vein walls, etc., etc.... I would get a thorough exam and release from the Cardiologist first.

I agree with Lifespalette..I exercised alot you name it i did it..I ate healthly..didnt smoke didnt drink and LOL the more exercise I did the more weight I was putting on..I had acupuncture desperate measure hate needles but nobody was listening and no fault to accupunturist as didnt know my conditon but my BP was shot to a very dangerous level..in a way this is what found conditon..I would definately say have your heart checked your BP.

I exercised prior to surgery quite a bit. It seemed fine some days, but other days my joints would swell up fairly bad. For about 6 months prior to surgery I basically stopped exercising because of knee and neck joint pain and swelling. I was pretty miserable.

After surgery, I have had to be careful. Impact exercising like running and jumping does a real number on my upper back and neck and my knees swell. About a year after surgery I learned that I have arthritis on my vertebrae and knees and they supposed that it was growth due to the extra growth hormone while the tumor was still there. I went to see a doctor about my knees and he said "stop wearing high heel shoes" and then left the office. That was such amazing medical advice I thought he should be given an award for genius of the century ( I don't wear high heel shoes).

So, now I use the elliptical machine and do some yoga and strength training. I miss running and sports and if anyone knows how to get back into that after all this damage, I'd be interested in hearing.

I guess I'd just say that prior to any treatment, I'd be careful with impact exercising. I think that's why my knees are "crunchy" -- the extra acromegaly cartilege broke off and now it's floating around in there. But that's just a hypothesis. :)

Also, did any of you find that you have weight that just will not come off no matter what you do after surgery? I cannot get back to the weight I was before the tumor started growing- and I don't know if that is just because I actually have more cartilege now so I'm just going to weigh more, or what. I'm pretty sure I'm not packing an extra 20 lbs around in my new bigger nose though. haha.

forgot to say- my blood pressure was really high prior to the surgery as well, no matter what I ate and despite exercising- I just did like these guys said and kept an eye on myself as I was exercising, because yeah it was scary. In the end I think stopped exercising more because of my joints than anything else. I was really an extremely solid mass at about 40 lbs over what I was used to, with joint damage and exhaustion from the sleep apnea.... everything hurt.

Oh my god jennyjen7, you sound like my twin. I have all the same problems. I'm male, also have very very low testosterone. Not my knees but my shoulders and back. I've been told I may need shoulder replacement surgery.

I can't recommend yoga enough. It's low/no impact, you get a hell of a workout, and you feel like you're stoned when you leave. Plus, you'll notice being less stressed in your everyday life and things start to bother you less. I'm pretty sure yoga has saved my life.

I just started commuting by bicycle to my work again after not having done so for a few years (stolen bike). It's 13km each way and it's tough, but I can do it without any issues.. aside from the lack of "lungs" from not doing much cardio for quite awhile.

Everyone is different.. like others have said, listen to your doctors and listen to your body.