Achondroplasia (Dwarfism) Support Group
Achondroplasia is a type of genetic disorder that is a common cause of dwarfism. Only one copy of the gene needs to be present for the disorder to occur. People with achondroplasia have one normal copy of the fibroblast growth factor receptor 3 gene and one mutant copy. Discuss everything from relationships to lifestyle challenges.
New here and need help dealing with chronic pain
deleted_user
Hello....i am a 38 male with (achon) dwarfism.....I don't know what to do anymore and I am sick of putting my family through all this...You see at the age of 15 i had to have my 1st spine surgery,,,,,They installed 2- 8" rods into my back because my spine is deterating. I led a normal as I can be life....i found my beautiful wife and we started having kids(she is normal height) and thank you GOD for letting my children not be cursed with my problems...I could walk jump work and play with my kids ....then one day my 3 yr old jump up on me on the front and I fell backwards and hit my back on the board going across the couch .and I heard a snap and my legs started to feel funny...I put him down and said to my wife that something was wrong....within 3 months I lost almost all mobility of my legs....FINALLY we found a Dr that would take me on....(after numerous Dr's said no) After a 9 hr surgey and 4 months of rehabilitation I could walk again and didnt have to be on any meds. After that I knew I had to be careful seen's my Dr took out my old rods n screw's ,he put in two titanium 12" rods and about 15 3 inch screws. well about 5 years ago I was just walking and bent over and heard a snap and couldnt stand back up.....again spine surgery becuase I was in so much pain could not walk could not do hardly anything.this time they went threw my back and cut threw my lower stomach to get to my back.....After the surgery and therapy i was good for about 3 months...and now I feel like I am back to were I started but worse....I haVE PINCHED NERVES THAT FEELS LIKE A HOT NEEDLE GOING FROM MY BACK DOWN MY BUTT AND ENDS IN MY FOOT.i KNOW THERE ARE PEOPLE OUT THERE WORSE THEN ME...but i am sooo sick of the pain it is everywhere now....I HAVE BEEN TAKING VICODENS AND MORPHINE AND FLEXERIL for 3+ years now....being short like i am my arms are already short and with my back being fused I cant reach below my waist....THANK GOD FOR MY WIFE, SHE IS FROM HEAVEN. I have 3 boys and 1 girl and I fell like they got cheated becuase I am stuck in my wheelchair......I am sorry i need to stop here for now...my eyes need a break from crying as I write this...
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