my daughter is now 5 months and is waiting to see a geneticist about her achondroplasia, none of the doctors have actually sat us down and asked what our worries are or explained the condition and so we had to go searching online. we found a website which told us that children that get the gene from both parents dont live past a few months and so as you can imagine i cant sleep or eat with panicking for her all the time, i love my daughter to pieces and to me she is perfect, my 'petite princess' i call her, but im so terrified and no one at the hospitals will talk to me so please cane someone put my mind at ease, my beautifull princess needs her mummy to stop stressing so much
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