I was just recently diagnosed with CVID after years and years of trying to figure out what was wrong with me, why I most always feel bad, exhausted etc...not to mention friends and family thinking it...

I'm 50 years old and was diagnosed with Common Variable Immune Deficiency three years ago. I'm finding it more and more difficult to continue working. Even with the IVIG treatment I'm still sick a...

A pv survivor who was diagnosed in 2008 after 7 long months of misdiagnosis. I had lesions over 80% of my body. Tried many combinations of various drugs and it kept getting worse. Finally had to...

Diagnosed with Myasthenia Gravis September 2014 Treatments have been Prednisone, Pyrodostigmine, IVIG and a recent THYMECTOMY in February of this year. There's no local support groups that I have...

Diagnosed in the last 2 years with hypogammaglobulinemia with no recurrent infections or symptoms except for low Ig count. After baseline CT scan of chest found to have atypical cells in lungs which...

CVID diagnosed 6 or 8 years ago. Also Rheumatoid arthritis, fibromyalgia, osteoarthritis, Sjogrens. On gamma gard subc weekly since November, previously in IVIG

Just recently diagnosed with CVID in fall \'14 but have been sick probably most of my life. Have had numerous other health issues and had Aseptic Meningitis reaction (requiring hospitalization) to my...

Diagnosed with CVID after 3 years of sinus surgeries and 3 Allergy Doctors and getting used to and accepting IVIG infusions

Diagnosed with CVID last year at age 39Now getting IVIGTrying to learn to live in victory with CVID

Semi-retired, living on the central coast of CA. My immunologist practices @ Children\'s Hospital - L.A. I receive IVIG infusions every 21 days..

I've had MG since 1998. Ive had just about ever treatment available with the exception of SQIG which is coming soon...Mestinon, Cellcept, Prednisone, Imuran, IVIG, Plasma Pheresis, blood transfusion,...

Diagnosed Myasthenia Gravis July 2012. Started at 80 mg prednisone with mestinon and one round of IVIG. Prednisone tapered to 25 mg on alternating days, mestinon stopped.

My name is Michael, I am 55 and have Myasthenia Gravis for 1 1/2 years now. I have been on Cellcept and 5 days of IVIG a month for a year now with no improvement. I will be going on Imuran, which my...

dxed with MG in Jan. 2004 in crisis on a vent ---- been there done that IVIG -- been there done that PEX -- been there done that back to work full time since April of 2005 currently only on cellcept...

After suffering all kinds of infections and cellulitus infections for my whole life I got diagnosed with low igg levels and have been getting ivig transfusions.