worst fears?
We had a call from the hospital about the CT a few hours ago.The main news was that the pelvis tumour is advancing quickly, though the kidney tumour is stable (I thought that was good, but apparently not, in view of the pelvic one). The lung nodes weren't mentioned. Was a very perfunctory call. D was told not to restart Sutent, as it didn't appear that it was useful, and that they'd have a team meeting to discuss it next week. Till then, just wait. I know that here in Britain, there are no other drugs licensed for use on the NHS. The overall tone was very pessimistic. It does seem to me that 2 rounds is too soon to judge its effectiveness?? Too early in the day to decide it's not working?? I must get a list of questions/issues together for the meeting next week, will deal with that when not feeling so knocked sideways. Then the GP came by; she'd been called by the specialist nurse from the hospital. She was very concerned, but her overall message seemed to be - this is the end of the line, we're here to make you as comfortable as possible. I know they are not in the business of giving false hope, but is this not rather an extreme reaction? This is to the wonderful man who's going to get up on stage and play in his band for an hour tonight!! He is being just grand. I feel like this is the dx all over again, and i am just sad sad sad. My own faith at this point is utterly shaky, but D's is very strong, and i know he would appreciate your prayers. My inner warrior is in hiding at the moment....i need to find her somewhere, or I am no use to anyone!!!
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