WHOO! HOO!
I am sooooo excited! I received notification from the Health University in our state (about 100 miles away) that they have accepted my Primary Care Physician's request for an evaluation by a neurologist on their PD team!!!!! (My Primary Care doc actually would have preferred to send me to the Mayo Clinic, but since I live on the West Coast he said the costs would be too high. He said he has referred other patients there - where they spent an intense week of testing, but by the end of the week had an accurate diagnosis & treatment plan. Anyone know anything about this???)
My neuro openly says, "I don't know what to do with you!". Her opinion is I am "hung up by something" and she cannot figure out why I am not getting any better. REALLY???? I understood PD is progressive. She keeps going back to when I was FINALLY referred to her. At that time SHE took me off one of my medications (Effexor) without giving me a schedule of just how to go about that. It is now known by family & friends as "the summer from hell!". I will admit it kicked in my PD to an almost intolerable level. However, I had been to my Primary Care doc several times over the years for various issues (like frequent falling) that all came together under my PD diagnosis. She doesn't seem to know me or have deeply studied my medical files. In fact, from visit to visit she forgets what she ordered or asked me to do.
It was the doctor that gave me my Cognitive test that recommended I go to my Primary Care doc for the referral after going over my history and then reading her chart notes. He said no wonder I was confused! Her notes were all over the place and listed various forms of PD as my diagnosis - all would require different treatments. He felt I would benefit by going to another doc - especially at the University. Said he certainly would if it was him!
Dreaded my visit to me neuro 2 days after my letter arrived (and appt. was scheduled for January). I was certain she would drop me from her patient list. But, she was thrilled and thought it was an excellent idea & was anxious to see what they have to say about my case.
Thought I had the answer to "What the heck is going on with me?" almost three years ago. Now I will get that 2nd opinion from the top docs in my area. My husband asked me if I was afraid they would say you don't PD. NO! I'm the kind of person that likes to know exactly what is going on. I can tackle anything - or at least give it my best effort- once I KNOW the enemy!
PRAYERS ACCEPTED as I approach my appt. date .....Monday, January 13th. I pray for the knowledge of the doctor I see & a firm diagnosis (of whatever), along with a treatment plan.
My neuro openly says, "I don't know what to do with you!". Her opinion is I am "hung up by something" and she cannot figure out why I am not getting any better. REALLY???? I understood PD is progressive. She keeps going back to when I was FINALLY referred to her. At that time SHE took me off one of my medications (Effexor) without giving me a schedule of just how to go about that. It is now known by family & friends as "the summer from hell!". I will admit it kicked in my PD to an almost intolerable level. However, I had been to my Primary Care doc several times over the years for various issues (like frequent falling) that all came together under my PD diagnosis. She doesn't seem to know me or have deeply studied my medical files. In fact, from visit to visit she forgets what she ordered or asked me to do.
It was the doctor that gave me my Cognitive test that recommended I go to my Primary Care doc for the referral after going over my history and then reading her chart notes. He said no wonder I was confused! Her notes were all over the place and listed various forms of PD as my diagnosis - all would require different treatments. He felt I would benefit by going to another doc - especially at the University. Said he certainly would if it was him!
Dreaded my visit to me neuro 2 days after my letter arrived (and appt. was scheduled for January). I was certain she would drop me from her patient list. But, she was thrilled and thought it was an excellent idea & was anxious to see what they have to say about my case.
Thought I had the answer to "What the heck is going on with me?" almost three years ago. Now I will get that 2nd opinion from the top docs in my area. My husband asked me if I was afraid they would say you don't PD. NO! I'm the kind of person that likes to know exactly what is going on. I can tackle anything - or at least give it my best effort- once I KNOW the enemy!
PRAYERS ACCEPTED as I approach my appt. date .....Monday, January 13th. I pray for the knowledge of the doctor I see & a firm diagnosis (of whatever), along with a treatment plan.
Replies
That is wonderful news! I will pray for those exact things for you too! You certainly deserve to have an accurate diagnosis after all this time. I know its been very frustrating for you with your current doctor. I think it will be good to go to the clinic close to you because if you like them then maybe you can switch to them for your treatment if necessary. If its connected to a University, they tend to be up on the latest information. I so hope this gives you some answers. We are going to be positive - This will give you the answers you need!
Enjoy the holidays! Hugs!
Yes you certainly deserve to know exactly what your up against. Prayers out going and Semper Fi. Brain