What a difference a day makes
It's 2 1/2 years since I was first diagnosed with cancer in my appendix, it was found because doctors thought I had appendicitis turned out it was cancer in my appendix and so not only was my appendix removed and also the right half of my colon. This is followed by 6 months of chemo, CT scan after a chemo shows no cancer but multiple PE's caused as it later turns out by protein S deficiency, so that makes it two officially classified rare diseases in the space of 8 months. Fast forward to today and meet with my oncologist for what should have been a routine check up, no such luck, turns out the CT scan I had 6 months ago showed something and that the one I had two weeks ago showed the something had grown, the something is in the region of my original tumour. Next steps are a PET scan followed by another oncologist visit which will take about 4 weeks in total. The hard thing about this is that I qualified as a ski instructor this winter something I had been wanting to do for a while, actually have a job I'm really loving, and really getting to the point of starting to put the last 2 1/2 years behind me and starting to enjoy living and this happens. At the moment I am thinking the cancer is back but has been caught early enough to be treatable hopefully with just minor surgery, hopefully not requiring a bag,and maybe more chemo and then start living again.
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I\'m hoping for the best for you and that you can get the answers to the questions you have over the coming weeks. My thoughts and prayers are with you.
My surgeon discouraged me from getting scans during chemo because of
all of the different things that they can pick up: Scar Tissue, inflammation etc.
I am really hoping yours is not cancer. They ( my onc and my surgeon) both mentioned how rare it is for cancer to show up in the original spot, more likely the lungs and liver.
You have been such a wonderful support for me and I am hoping you re able to ski this winter and get back in the game and live a long healthy life.
I m sure this is a big shock... and the waiting game is hard.
Thinking of you... MPNC