went to neuro today
Well off to the neuro i went today, he wanted to know how the sinamet was working, i told him that it took 6 weeks to kick in, but still does not make me 100%, but hey 80% is okay i guess... I told him i take it every 4 hours, well generally one in the morning and one at lunch time,,,,,,, not at night unless i have to go out...... I feel almost cured, and sometimes i went with out it totally, and my symptoms did not come back in avengance as i expected...... Honeymoon period he told me , sinamet was hanging around in my brain working, but if i did not take it, my symptoms would return slowly. Saw the physio, saw the nurse for the first time ,,,,,,,, questions questions,,,,,,, did i see things, how many steps in my house, do i need rails to shower with, who do you live with, who helps you ( mmm thats a big no one) , can i drive, do i sleep, am i constipated,, am i depressed, close your eyes, balance on one foot and dont fall over, walk backwards, count backwards by 7,s and walk backwards, (gosh give me a calculater i tell them!!! Math i fail at) ,,,,, on and on and on......... OH MY GOD is this my future???????? NO!!! NO!! im screaming inside , im scared !!! So much, to think about ... so for the greater cause, i said okay go for it, research on me,,,,,, i volunteered for experiments, so in July they are gong to do a lumber puncture and examine my spinal fluid for proteins, which is a research programme going on here in australia, they need 150 people, and had 30,,,,,,,,,, so me now number 31,,,, better not hurt me or o will do the girl thing and cry But i ditched out on the nucluer heart tests tho,,,,, told them they can take anything they like out of me, but you are not going to put anything foreign into me,,,,,,,,, im obviously already messed up enough I feel generally okay, but when they throw these questions at me, its like wow is this what i have to look forward to ...... NO NO NO, i dont want this :( FIND A CURE,,,,,,,,, NOW SOMEONE PLEASE
Replies
You are to be commended for your positive outlook and determination.
I will keep you in prayer and wish you well.
blessings,
rev bry
Oh Peaachy,
I am so sorry you have to go through this alone. I wish I could just come over there and really really hold you for awhile. We could cry and laugh together until we were completely worn out, which shouldn\'t take long in our cases. At least we can write out our troubles in here and others in the same boat can read and understand. But you need a really good friend there, so make it priority to find someone. Start looking really looking at people around you and if no one there fits what you want look some more. There will be someone who will look back and you will click. And it should be a woman not a man. It will be hard but worth it. Until then talk to us. I think about you everyday. You were my first friend here and that\'s special. Luv ya, Sass
I get scared about this too sometimes. I think we all do, especially when you\'re single as we are. Big hugs to you! I know God knows that I\'m in this situation, and He will provide any help that I need :) He always does. He can for you too. PS I couldn\'t count by 7 backwards, and had a dickens of a time putting pegs in holes :)
I too get very scared when i talk or read about what they say might happen to me, but they are going on what happened to other people. we are going to have a cure ..... believe it!
We have to. Nobody else is going to do it for us. I know that it can be done.
Bryant