waaah

I really need more information about ALS, because its really confusing to me. My dad was diagnosed with Myasthenia Gravis two years ago, then had a second crisis making them consider ALS. He couldn't breathe, and passed out etc. Was intubated, and a few weeks later returned to fairly normal, but still on a vent. I guess his crisis never seemed to have ended, because 10 months later he's still on a ventilator. He's done weaning, but the rehab has been so inconsistent that it's never stuck. He's done physical therapy and done great with that. Can walk, can pull himself up in bed, can text me, and can push along in a wheelchair with his legs. He's got serious anxiety when trying to wean, as hes afraid to not be able to breathe, of course. Once the rehab started a new method two weeks ago, he's been able to do 30 minutes off the vent. His rehab Dr thought MG was more likely, as IVIG treatments etc have shown progress. His neurologist said ALS. A second neurologist today, said probably ALS, which made the rehab therapists say they may discontinue any treatments and therapies. I met a few residents families at his nursing home. Those with ALS are in such a different state than my dad. Even their stories of the onset are so different. And the Dr two years ago said if its ALS you have about five years. It's been 3, since onset, and he's gotten better besides being dependant on this damn vent. What the hell. I'm not happy. I have my own seriously disturbing anxiety issues, but today after this Dr appointment I am just do frustrated I can't even think about anything but ALS. Friggen healthcare system is so messed up too. Once they hear ALS you might as well just give up, because your drs have.