Update on me

I have been struggling over the last few weeks since my last post. I am still having spasms & pain in my back constantly. As well as that fatigue has gone through the roof. Both legs have been spasming bad & I dont just seem to be able to get on top of it.
This week I have got a rotten cold/chest infection etc & the dr gave me a week off work so I am home for a few days.
Today I wen to the oorthotics speciialist & got 2 new foot splints & new orthotic shoes. Hopefulty these will help me to walk better.  I then went to the Dr & then home to rest.
 
Next week I have a appt with centrelink & also neurologist appt so should get some answers i hope.
 
On another note, I have found some of the main board discussions most frustrating & depressing. I will still occasionaly read the posts as I have made a lot of friends there.  Just wanted you to know why I have disapeared.
 
God bless you all
Sue

Replies

deleted_user
deleted_user

Prayers for relief of your pain. I certainly understand what you\'re going through. I have occasional times when I DON\'T have pain but they are too far inbetween. I would definitely like to know if the orthotics help you! I have an AFO for foot drop - and it helps me walk better along with my cane. The mention you made of the other side of the board and the posts I agree with - sometimes I have to just stay away from there because it just causes too much stress for me. You have to do what\'s right for you.
Best wishes for a better tomorrow!!! Christine
deleted_user
deleted_user

SUE,
I SURE HOPE THE DOCTOR\'S CAN HELP YOU.I HAVE CRONIC
BACK PAIN WITH SPASTISITY.MY LEG\'S GET THE TREMOR\'S
WHEN THEY\'RE REALLY TIRED.BACLOFEN IS GOOD FOR THAT.
I\'M ALERGIC TO IT SO I TAKE VALIUM.HELP\'S TREMORS,SPASTICITY AND ANXIETY AT THE SAME TIME.I\'M NOT
A PILL PUSHER,BUT GOSH WE HAVE TO BE ABLE TO FUNCTION
SOME OF THE TIME WITHOUT THESE SYMPTOM\'S CONSTANTLY
ACTING UP.I\'M GLAD YOU\'RE GOING TO SEE THE DR.
HAVE YOU HAD THESE SYMPTOM\'S FOR A LONG TIME.

I HEAR YA ABOUT THE POST\'S,I DON\'T GO THERE THAT
OFTEN.WISHING YOU ALL THE BEST.DIANE
deleted_user
deleted_user

Thanks for your comments. I am already on 100mg (4x25mg) baclofen a day & calium at night as well as heaps of other meds. My back has only been spasming since lumbar puncture last month & same with right leg, that is usually my good one now spasm & pain a lot.
Just to top things off my hubby was in a car accident. He is ok but someone hit the rear of our car. Just hope he doesnt have any effects later.
Hugs, Sue
deleted_user
deleted_user

Yes Baclofen...I think sometimes I need to be on this too. I am on Copaxone though. Remember when we get colds and infections it takes up longer to recover and we really feel bad. Be good to your body and take it easy. Hang in there.