Up, Down & All Around
Big Sigh............what to say, where to begin, without sounding senseless & rambling.
Saw my rheumy last Thurs. Went pretty good I think with the exception he wouldn't take me off prednisone yet however, I'm down to 1/2 a pill every day which would be, what, 2.5 mg or whatever. Still staying on methotrexate too, big sigh. I think he feels that although I'm pretty well balanced I still had to tell him that I do have some extreme dry mouth issues & had a bout with my vasculitis when I had that cold in May. There's been a few other minor things once in a while but he's fussy that way & until I can go a set period of time satisfying to him abt 95% symptom free then me & a few drugs will stay buddies.
Saw my diabetes dr on Fri. I know now this new dr will really work for me. I guess as we get to know each other he's becoming quite easy to relate to & talk to. He did say my thyroid is a bit off (can't remember which way) but I'm adding one extra pill so on say Sunday rather then 1 pill I'll take 2 so it will be rather then 7 a week it will be 8. He looked at me at one point & all of a sudden asked abt my injection sites it kind of thew me off for a min. I kind of showed him the areas & he asked me to just lower my sweats which I did. He wanted to see my abdominal area & when he did he was pleased. He told me abt someone he saw that a.m. that had only been using the same two abdominal spots for 20 yrs or so & that the spots were so bad you couldn't even touch them. When he reviewed my blood tests he was not happy abt the extreme lows I had. Actually he was not happy abt all the ups & downs. His main concern with my lows is the brain damage that can occur & that at my age it’s more of a concern because it can’t really be reversed totally. We talked abt I know it’s a carb count issue with my diet & that I just can’t seem to get total control on that particular thing. So he’s going to send me to our city’s major health centres Diabetes Education Centre to sit down with a dietition, it’s been abt 3+ yrs since I have anyway so it will be good.
I’ve been feeling way too fragile lately, like I’m so trying to balance on this super fine wire & I’m getting so tired of trying all the time. Hubby had the bone scan (gee even in print here I hate having to go here, I don’t want to be here darn it all) now we suffer till Sept 9th to find out??????????????????? I keep telling the Lord I’m trying to fight so very hard but it’s at times getting just too hard. Then, Bingo, all of a sudden I’m good old me again, then Bingo, I wake up feeling sort of black again. Oh boy, that’s all I can say! I’m so putting out there that we will conquer & win, we will conquer & win!!
OK I’ve whined enough here for now so for my friends reading this I do so love you for letting me unload a bit of my burden.
Saw my rheumy last Thurs. Went pretty good I think with the exception he wouldn't take me off prednisone yet however, I'm down to 1/2 a pill every day which would be, what, 2.5 mg or whatever. Still staying on methotrexate too, big sigh. I think he feels that although I'm pretty well balanced I still had to tell him that I do have some extreme dry mouth issues & had a bout with my vasculitis when I had that cold in May. There's been a few other minor things once in a while but he's fussy that way & until I can go a set period of time satisfying to him abt 95% symptom free then me & a few drugs will stay buddies.
Saw my diabetes dr on Fri. I know now this new dr will really work for me. I guess as we get to know each other he's becoming quite easy to relate to & talk to. He did say my thyroid is a bit off (can't remember which way) but I'm adding one extra pill so on say Sunday rather then 1 pill I'll take 2 so it will be rather then 7 a week it will be 8. He looked at me at one point & all of a sudden asked abt my injection sites it kind of thew me off for a min. I kind of showed him the areas & he asked me to just lower my sweats which I did. He wanted to see my abdominal area & when he did he was pleased. He told me abt someone he saw that a.m. that had only been using the same two abdominal spots for 20 yrs or so & that the spots were so bad you couldn't even touch them. When he reviewed my blood tests he was not happy abt the extreme lows I had. Actually he was not happy abt all the ups & downs. His main concern with my lows is the brain damage that can occur & that at my age it’s more of a concern because it can’t really be reversed totally. We talked abt I know it’s a carb count issue with my diet & that I just can’t seem to get total control on that particular thing. So he’s going to send me to our city’s major health centres Diabetes Education Centre to sit down with a dietition, it’s been abt 3+ yrs since I have anyway so it will be good.
I’ve been feeling way too fragile lately, like I’m so trying to balance on this super fine wire & I’m getting so tired of trying all the time. Hubby had the bone scan (gee even in print here I hate having to go here, I don’t want to be here darn it all) now we suffer till Sept 9th to find out??????????????????? I keep telling the Lord I’m trying to fight so very hard but it’s at times getting just too hard. Then, Bingo, all of a sudden I’m good old me again, then Bingo, I wake up feeling sort of black again. Oh boy, that’s all I can say! I’m so putting out there that we will conquer & win, we will conquer & win!!
OK I’ve whined enough here for now so for my friends reading this I do so love you for letting me unload a bit of my burden.
Replies
You can vent anytime there girl. We are on this Lupus roller coaster and we can\'t get off it. I try to stay positive. I find if you have a positive attitude about your disease and life. You can conquer more. Stay strong. I\'m happy you are down to 2.5mg of prednisone. I\'m still at 4mgs.
Thinking of you always, hugs Nance
Even when you are down, you are such an inspiration to me! You seem to handle things so well and you are so dedicated to things. I have a feeling your carb count is always very very good even if you don\'t know exactly what your count is. Probably way better than most people who should be counting. I\'m praying for you guys. I know waiting is hard. God will wait with you. ; ) The thing about the prednisone and the mtx ... my doc keeps reminding me that if I\'m not on them and I am suffering, it could be hurting my body long-term in ways I don\'t realize, so the meds could be preventing all sorts of damage, so that\'s one positive way to think about it, if that helps any. Sometimes I remind myself that my mtx could be sweeping out small cancers, since that is how they were first used anyway. Not sure if it helps you but I know it often helps me. big hugs, m
I just knew something was bothering you. Pat your doing excellent with what your dealing with. Please don\'t give up , try and stay strong. God is walking each and every step with you and guiding your way. Sounds like you have a really concerned doctor and that is half the battle. I will keep praying for you as you are always on my mind and in my heart and in my prayers. I love you more then you know. Hugs and kisses xoxox Frieda
It so helps to have these journals to read and know we aren\'t the only ones with the roller coaster of ups and downs!! Never feel bad about venting on here though, sweetie. That\'s what ds is all about! We cannot deal with anything until we put it out there. Seems like you are doing great with all you are going thru, my friend. My love and prayers go out to you and your hubby. Hope things are a wee bit better for you each and every day. Hugs~Kim xoxoxo