TOO FREAKING FUNNY!!!!
OK, saw neuro, told him the KLONOPIN stopped all jerks but made me evil. So he said he'd add a new drug to take out my evil side effects. Thought great. Then he mentioned wanting to do TPI's in my neck! I said, "Uh, can't we just take another pill?" He said "No as this would prove if it were in my spine vs brain. My question is if the pills work, doesn't that PROVE it's in the brain? And even if not, WHO CARES? Geez! Needles stuck in my neck I just have a vision of Frankenstien! ROFLOL But here's the hysterical part, the new med is LAMICTAL (lah-MICK-tall). NOW THESE ARE THE CAUTIONS ACTUALLY FROM MY MEDICINE INSERT and I about died laughing. Like I don't have enough health issues/concerns! Patients prescribed LAMICTAL have sometimes been given the wrong medicine in error because many medicine have names similar to LAMICTAL. Check the tables you receive against the pictures of the tablets below. The pictures show actual tablet shape and size and the wording describes the color and printing that is on each strength of LAMICTAL. (So, like now I have to play pharmacist?) Occasionally, the symptoms of depression or biopolar disorder may include thoughts of harming yourself or committing suicide (I do NOT have this problem so the pill will possibly help me get it?). Tell your doctor immediately or go to the nearest hospital if you have any distressing thoughts or experiences during this initial period or at any other time. (Does this include when I have to reconcile my bank statement and pay bills?) Common side effects with LAMICTAL include dizziness, headache, blurred or double vision, lack of coordination, sleepiness, nausea, vomiting, insomnia, and rash. NOW PEEPS, I already have constant headaches (on meds for that!), lack of coordination (on meds for that!), insomnia (on meds for that!), and I'm paying for a pill to help me HOW? Thank God I go to see my sis's neuro April 4 and maybe he can definatively diagnose the PKD as she has. I will need to quit all meds for min. 24 hrs. so wish me luck! SHEEZ! Thank God for good meds! ROFLOL
Replies
OH, great quit all meds for 24 hours? When you see him you will be in some crazy withdrawal phase! You could be either better or worse than usual. Lamictal does sound like Lamactal which I believe is for nail fungus! Could be an intersting confusion, maybe your toes would stop twitching huh? I would be skeptical too, sometimes doc\'s hand out drugs without realizing how the interactions might precipitate more problems. It happened to me with my neuro, so I went of all neuro meds for 6 months and started over, then I finally got some relief. Can\'t they put some spine block injection in to stop the spasms?
Hope you can hang in there till april it isn\'t too far away.
Pork chops were wonderful by the way, had them yesterday!
Nan
Well, I DON\'T WANT NEEDLES IN MY NECK/TRIPEZE MUSCLE! Look, I would rather do DBS than that! I have a real phobia about needles and I\'ve heard how this procedure hurts PLUS IT WON\'T \"FIX\" ME! It won\'t even last 6 wks! So I want to torture my poor bod why?
Lets see Klonopin, Lamictal now what drug begins with M? lets try Metaxalone, then Naproxen. Forget the TPIs Your neuro sounds as if he hasnt a clue what to do next. For crying outloud. If he cant help you than why doesnt he just say so, so you can move on. Wish you could come to Georgetown U medical Center. There are 3 of us in out DC support group which go there. We can have a Dystonia party. The beverages will be well shaken. Tons of Hugs
Andro.
YO, MY DEAR ANDRO! Hey, no, all apptmts off with current neuro, I\'m going to see my sis\'s as he dxd with just a look over and a family history plus she told him about my \"jerk fest fits\". He\'s seen only 1 case in all of WV it is so rare (PKD/PNKD). That being the case, it\'s a toss up if the jerk fest is from the neck/upper back injury (work) or actually in the brain. Personally, I figure if the meds work, ain\'t that PROOF???? Also, talked to sis and KLONOPIN IS EXACTLY WHAT IS GIVEN FOR PKD/PNKD. DUH.
Hugs to you my dear. We need shirts made that say JERK ON! LOL