Today is Good \ Random Bad PTC Days

Friday was horrible horrible horrible.  Thank goodness I was already off work as there was no way I could have went.  I somehow managed to make it that night to horse races to meet my husbands friends but only because I took a pain pill.  Saturday morning wasn't much better but by Saturday night it let up and Sunday I was fine.
This week was good I only had a bout of symptoms for about three hours one day and I kind of am feeling pressure in my left ear now and a slight headache starting.  I'm hoping it stays under control.  I go to neuro ophthalmologist Monday and I'm not sure what to tell him.  I can't say I'm better because I keep having bouts, but I'm not as horrible as I was.  I don't want to go up on medication unless I really need too either and I definitely don't want to go down either since I'm still having bouts of symptoms.
I guess he we tell me by what my optic nerves look like.  If they are swollen then hopefully we just do the same.  If they are not I don't want to go down on meds yet because why mess up a good thing since I'm just having bouts (sometimes a full day or two) versus constant everyday hell.
For now I had an okay day, just some pressure in ears and slight headache.  One day at a time!