tired of it all

it seems like most of my journel entrys are listed as frustrating. and why is the txt size so damn small???first the dr says joint dysfuntion, inflammation, and such. then after i bleed from the rectum and get severe stomache pain with the back getting worse im told kidney stones, diverticulosis, and some as yey unknown infection. now im being told that the kidney stones, being still in the kidneys dont cause pain,( even tho i have talked to people who have had them and they say B.S.) that the ct doesnt show diverticulosis, and the doc questions whether there is an infection at all. ( more blood work yay) i'll find out later today about that. on top of all that the dr screwed up my script of oxycodone and only gave me 30 instead of the 60 we agreed on. so i have to go back to the dr office and get that fixed. im so tired of "mystery" pain. with all the technology why cant they figure it out?? to have one dr say one thing and then another dr says another 2 days later who do i believe?? i was actually happy when the e.r. told me kidney stones and the diverticulosis, at least i knew what it was and it would( i thought )go awy. i dont know how much more i can take. im not talking suicide. i would never do that to my kids and mom, but im getting to the point of just lay on the couch all day and give up trying to manage. i really feel like god and goddess have given up on me.

Replies

deleted_user
deleted_user

AMEN. Omg a darling after my own heart. My most recent hospitalizations happened every two weeks from what turned out to be a very high pseudomonas infection in my blood that my port was causing to come back even more with 102-104 fevers. When they told me they had to take my port out to hopefully control the infection, I was GLAD.Nearly cried with relief that I had some kind of answer. I 100% agree with you and get where you\'re coming from. You are definitely not alone.

Thank you for your help.
deleted_user
deleted_user

I\'m so sorry that\'s happening to you
It\'s so much more difficult when you don\'t know what you\'re up against
I can\'t imagine, it\'s bad enough just not knowing but to have the relief of a diagnosis retracted like that, I think I\'d lose my mind