Thursday December 23, 2010

Today I recievded a call from the doctor.  I was surprised the doctor, usually the nurse calls.  The lab results SLE Lupus, Mixed Connective Tissue, polymyositis and ???  I see the rheummie January 31st, 2011.  She is mailing me the results so I have them.  Then I will find out the name of the fourth one. So I will add that to the Fibromyalgia and Chronis Fatigue Syndrome.  Wow all this information and no one to understand me here.  I do not want to hear I get pains too, I know what your feeling, you look fine, you don't look like you are in pain, exercise you'll feel better, why are you still wearing that, if you just went to bed early, stop eating that, its just the fibro, you can just take lyrica..it says it helps people with fibro, they show old people why are yo uso young? your just lazy and don't want to work, you were just fine yesterday.  No you do not know unless you have had it or have it!  I am not disabled cause I am fat.  Are you disabled for your stupidity? I have to just wanna cry and stay in my room but I can't.  I have 2 boys that need me and if I don't no one will.  I don't want my kids to be scared about my diagnosis, but yet I cannot do it alone.  I need help ..from them=(

Replies

kimberlhill1555
kimberlhill1555

I couldn\'t have said it better... I too am being passed off with just fibro... but I\'m a fighter and I think I finally found a doc that cares and listens... good luck with the new dx... and stay strong... youa are the only one that really know how you feel and how to fight for u... the other common factor with us is the lack of christmas spirit... I didn\'t even put a tree up... thank God my kids are teenagers and understand that they took my disability... my prayers are with you this Christmas... and just remember that here you are never alone... -Kim
kimlyon6
kimlyon6

Kim-I am sorry that you are going thru the same thing. I am also glad that I am not alone. I pray that you have found a good doctor. Thank You you to. My prayers are with you too, Thank You!! Kim
deleted_user
deleted_user

Hi there you did hit the nail right on the head. I hope you will be able to join the MCTD board they are so helpful and pleasant there. gentle hugs Marilyn.
kimlyon6
kimlyon6

Thank You Marilyn