Things are pretty bad, can it get worse?

Remember I mentioned resting my forearms on the edge of the wood desk when i was confined @ home...I was also diagnosed with a compressed ulnar nerve!   http://www.eorthopod.com/images/ContentImages/hand/hand_guyon_canal/hand_guyon_canal_anat01.jpg . My pinky & ring fingers on both my hands were numb (about 3/10 on pain scale).  How did they know it was compressed you ask; NCV!! http://www.nlm.nih.gov/medlineplus/ency/article/003927.htm  the neurologist said it would feel like static shock, no problem...^%$!@#* liar!!  Now I know why electric torture works!!   My last appt was to be a walk-in to review the MRI which was just to verify there was no nerve being pinched in the neck area causing the numbness in my fingers, he only added the MRI almost as an afterthought (thank god!).  Scheduled to leave 7 June 09 (sun) back home when of all things; the President of these United States decided to visit the area!!  Because of security measures my neurology walk-in turned into an 8Jun09 (Mon) appt.   Now get this, on 7June09 (sun) woke up with about 50% improvement in muscle control on right side of face, but still physically weak.  I was SO HAPPY about my improvement I went for a causal walk that lasted an hour near my apt after being cooped inside for almost a full month. When I got home I felt tired & slept for over 3 hours!! On 8 Jun 09 (Mon) further improvement from Sun on muscle control in my face, yes!   I went to my appt; the neurologist said everything looked good except I was low on protein!?!  (I was surprised; it was ironic since I’ve been making fun of my co worker for taking all those muscle/nutrition pills for body builders.)  The neurologist then asked if I was good enough to work again, I enthusiastically answered YES!! I returned to work on the 9 Jun '09...   I was contacted 16 Jun '09 by my doc's office via work to call the neurologist at the hospital back??  His first concern right away was that I am not doing anything strenuous at work. I thought he still had concerns about the Bells Palsy, but I was making such a good recovery.  I reassured him I was sitting on my butt at a PC during most of the nightshift. He told me the MRI wasn't reviewed before my Monday appt and when he finally did look at it he contacted the neurosurgeon to get advice?!?  He then told I have a syrinx?!? I said ok…what does that mean?  He told me how to spell it and stated the neurosurgeon said it wasn't critical, but they did want to see me in Aug '09.  The delay for additional test & eval by the neurosurgeon was delayed till Aug was to give my nerve time to heal; so they can verify if the Syrinx was causing it or not.  They did caution me IF current symptoms get worse or I get additional symptoms I'm to go back to the hospital IMMEDIATLEY. To say the least it got my attention and immediately searched the internet (work be damned). Couldn’t find anything on WebMD, so I searched further and found via the Mayo Clinic I had Syringomyelia!!!  I scanned thru the info and got the feeling this was not good...    Beyond astronomical odds the very next day after getting notified I got a massive headache localized in the back of my head (about 8/10).  I blew it off; excusing it as coincidence.  The day after my headache was only at 2/10 and by the third day it was gone, see I told myself I was panicking/ paranoid.  Within the next 10 days I got a new symptom, but minor. Then I got a second minor new symptom; the third symptom was pain in the neck area that restricted it severely. Finally I noticed my arm feel weird when I woke up one day, but blew it off. I quickly discovered a sharp pain on my left arm from the wrist to my neck when I used my left arm!!!! (such as using a doorknob, holding a door)  By this time I was in heavy denial and ignored it…by the afternoon I couldn’t touch anything without inflicting a very sharp pain in the same area.  I ended up suspending my arm away from things & very aware of where it was in relationship to anything.  This didn’t work out too well and looked up to the sky and said, “Alright I get it. I’ll go see my doc”  Within two days I was back at the hospital and saw a neurosurgeon within a few minutes of getting there. Since I was rudely awaken to the reality of having Syringomyelia I was very nervous, anxious, and…scared.  It didn’t help any when my doc started to use the soothing doc voice (they seem to use when things can go bad) before going to the hospital.  Anyway I saw the neurosurgeon who was about 100 yrs old and he stated bluntly that: There was no therapy of any kind to help my conditionOnly pain management for any symptomsDidn’t know what other symptoms I might get, how severe or how long they’ll last. Yea!Till my quality of life deteriorates where I can’t function anymore, they will perform a risky operation; where the recovery is also high risk   He asked if I had any questions, I answered no.  I was so shocked I didn’t want to know anything else. Later that day I got myself togther after talking to my roomates, one who was a doc (long story), enough to get a second opinion. This neurosurgeon was more patient friendly and explained all kinds of things about my condition including my “bonuses” which were: ScoliosisChiari Malformation phase 1, but not causing the syrinx?Epiglottis is deformed (explaining why I belch so much) … There was good news of course, I don’t have a tumor (Thank god), i can no longer run (YES!!, hate it.) and i didn't have anything that was going to kill me anytime soon.