things are becoming worse

Lately we have heard that the has approved vidasa for use under the PBS and we became hopeful that this would be our next course of treatment.However my Domenic condition has worsened.Last month he again was precribed exjade for severe iron overload,and has had to have 2 units blood forthe last 2 transfusions.Yesterday he was prescribed double dosage of prednisolone and also a drug to prevent more bleeds,his blood counts have dropped drastically since last trans.Wednesday last. Still waiting on start od trial becoming concerned about his future.