The True Face of Pregnancy Loss Awareness (It's Not the Ribbons)

October is Miscarriage Awareness Month.Like true awareness for any other cause, Miscarriage Awareness isn't just a blue and pink ribbon or a pretty locket or some words that say this is Miscarriage Awareness week so light a candle at 7 PM on October 15th.There is good intent, symbolism, remembrance and even some comfort behind these ideas. But those images are far too pretty of a package for what this really is and doesn't bring true awareness to the human experience.My husband and I have experienced firsthand (twice...) how painful it is to grieve someone we created...so cherished, loved and awaited yet someone who no one had ever met or seen.Intense grief yet...
No death notice.
No funeral. 
And the grief? Not over in a day. Not over in a week. Not over in a month. Not over in months.There is no "over". But rather a lifelong process and a new normal.Our now 7 year old daughter became all the more nothing short of a miracle. We still pinch ourselves that she is ours  The miracle of Brooke hits home in a way it never did before. Yet despite that love and blessing that I feel....at the same time she is not an anesthetic for my pain, nor should she be. She is her own person.
Separate from her lost siblings who did not make the full journey here into our arms.At the time of each loss, I fully believed I would never smile again. I would never laugh again. That full-on dysfunction where I couldn't imagine ever living again. And I wasn't even sure I wanted to live again. Yes, I admit that. I've decided it really is OK to admit that.Though slowly but surely life does return to a new normal.I can now be found smiling, joking, and living and embracing my life.....most days. But my heart still aches. Some days I feel it more than others. And there are milestone dates. And anniversary dates. And sometimes daily triggers.I have often read that studies show that even several years after a miscarriage and even if a healthy pregnancy has occurred in the meantime....some women still grieve the pregnancy they lost. That really speaks to the experience. That there is no replacement for what is lost.So for the "true photo" of Miscarriage Awareness...........I wondered....blue and pink ribbons aside what a more realistic photo would be for Miscarriage Awareness? I would not have wanted my photo taken during my worst of days. On the floor crying uncontrollably. Swollen eyes and all.Or the image of my grief stricken face and the sound of my heart pounding with anguish when we saw the ultrasound screen and heard the words "I'm so sorry, but there has not been any new growth since last week but we'll wait and see". Until weeks and several ultrasounds later there was no more room for hope.Or the image of my husband collapsing into my arms with grief when we came home from the hospital. The palpable emptiness and the finality of it all making its presence known. Or the image of despair and disbelief at having a second loss 4 months later.  And wondering how I would pick up the pieces.....again.Those moments are among many of the true images of miscarriage awareness. And maybe far less realized is that there are images I could describe for weeks and months later when most people (who have not experienced this) probably think a woman is "fine and over it". I am on a first-name basis with Grief and its twists and turns. Grief feels like my worst enemy at times but also my greatest teacher. I am a work in progress. And in many ways a better person because of this. I am not a religious person.  But I am spiritual.  I will close by sharing a few verses of a song that speaks to me:"Nothing Is Lost on the Breath of God" (by Colin Gibson) "Nothing is lost on the breath of GodNothing is lost foreverGod's breath is love and His love will remain,Holding the world forever,No feather too lightNo hair too fine,No flower too brief in its gloryNo drop in the oceanNo dust in the airBut is counted and told in God's glory..."

Replies

peacejoylove
peacejoylove

This post spoke my heart out. I could identify with everything written above. I\'ve had three losses and no live baby. I have no miracle to marvel over yet. My heart has broken three times and I\'m not sure it\'s all together yet! I have been running on a pattern...and with each loss, came a hope and new strength. But today, there isn\'t a hope and there isn\'t much strength, just a lot of fear and grief...
Andi60857
Andi60857

Thank you for sharing this! Sometimes I wonder whether I will ever truly get over my two losses! It shapes who I am now! I often internalize it because everyone thinks I should be over it already, not so easy to do. I feel I will always wear the scars of my angel babies!
ktk7779413
ktk7779413

You are an amazing writer and it shows that you speak from your heart. I have not experienced miscarriage or motherhood yet but as I struggle with infertility I can only imagine the pain one must go through losing a baby that was so wanted and so loved. Thinking of you and all my DS girls today. xoxo
HopefulinNYC
HopefulinNYC

Wow, I absolutely loved every word of this journal. You are an incredibly strong woman. So much of what you said really resonated with me, especially now as you could imagine. I had no idea there was a miscarriage awareness month, and I\'m so glad to know this. Reading about your grief made me burst out in tears and reading about the path you\'ve led since your losses, and how they have changed you and made you grow made me feel inspired and hopeful that someday, when the rawness of my recent loss subsides a bit, I might too find myself in a stronger place. Thank you xoxo
PolkaDotGirl
PolkaDotGirl

What a wonderful journal. You are so strong!
RoxyD
RoxyD

You echoed my thoughts. I am thankful everyday for the miravle that is my 6 year old son but I almost never forget the pain of my three miscarriages. You are right I have found reasons to smile and hope again. I don\'t know if I\'m even happy there is such a thing as mc awareness, I sometimes wish I could just forget but I will think of all my DS friends that have gone through a lost and hope we can all find a way to cope.
Hugs my friend
SoMuchHoping
SoMuchHoping

I really appreciate all your comments more than you know. And while I am touched that I put words to what you are feeling....I am so sorry to those who are experiencing this.

The above was actually what I posted on Facebook yesterday.

It was received well. (I was a little nervous.) and several individuals even reposted it on their own timelines. There was this fear of being a \"Debbie Downer\" because I wasn\'t posting something comical or catchy. But something real.

But there is so much in my heart that I want to express. And I so much want to be heard. That is what plagues my heart a lot....wanting to be heard in a world that is uncomfortable with death and sort of disenfranchises the grief associated with miscarriage. A world that would seem to rather talk about their latest app and the latest reality show and sling back a beer than hear about something real.

I have found a few people in my non-virtual life who are willing to be truly present and have the capacity and depth of understanding. And I try to focus on those blessings.

So thank you for reading. This has been a particularly emotional week for me for some reason. Yet another wave to ride out. I don\'t feel particularly strong.
CaliCutie81
CaliCutie81

You\'re words are so heartbreaking and beautiful at the same time. Thank you so much for sharing.
tntpetal
tntpetal

I LOVE the realness of this post SoMuchHoping. I think this journal entry embodies what \"awareness months\" are truly about. It\'s not really about the awareness so much as someone as amazing as YOU putting all your words out here like this so other precious people that have walked this road like you and your hubby can feel the love, understanding, and SUPPORT. So that other women can read this and feel normal. That what they are experiencing is ok because theyare not the only ones out there that feel this.
Bravo for posting this on FB too. I have no doubt your personal words of insight from your real experience spoke directly to someone you are connected to in FB world even if they never tell you so. It\'s hard to put the personal stuff out there we hold so very close to us. I admire & commend your strength and candor very much friend. *HUG!
ANB0417
ANB0417

I loved every word. Thank you so much for sharing!
Mag333
Mag333

You are a brave, strong woman. This past year I\'ve been amazed by the strength and courage I\'ve witnessed from women who\'ve had 1st, 2nd and third trimester losses, as well as lost infants a few months after birth. They inspire me to keep moving forward.10/15 is infant loss awareness day. It includes miscarriage, stillbirth and early infant loss.
SoMuchHoping
SoMuchHoping

I am touched by all of your words. Just really deeply touched. And it makes me feel embraced on an experience that has otherwise so often left me feeling isolated and invisible.

Posting this here and on Facebook makes me feel like I have a voice for all that is welled up inside of me (so much more that needs to come out....) And to be heard....there aren\'t words to describe what it feels like to be HEARD.

I received some equally supportive, very embracing comments on Facebook and some private messages as well. I\'m just in awe.

I am having such a difficult time right now as I head into autumn and come upon a lot of anniversary dates of the pregnancy I had last fall......so I feel like a storm is brewing within me and I need to find a way to hunker down. I\'m doing all the deep breathing in the world and it\'s not making enough of a difference.

Just hearing Christmas songs in Walmart today was very upsetting. We had our first loss 12/12/12 and so Christmas was a challenge last year.
And now everything feels tainted. Getting out the Halloween decorations today brings back memories of being pregnancy last year. Ugh.

I\'d like to go on vacation for two months and come back and find it\'s January and I am past this time of year!

I wanted to also mention that my mother-in-law---she\'s really a wonderful person. She has a warm heart and a great capacity to care for others. But for some reason she has failed my husband and I with being emotionally available through this journey.

I do think I am part to blame. Because her discomfort made me clam up and not talk about it at all. Ever.

She also does things without thinking sometimes. She emailed me yesterday to tell me how sad it is that my sister-in-law (neonatal nurse) is sad because a baby she has been taking care of at the hospital for a year---was taken off life support.

This email was such a trigger for me. Because it was baby related. And because I felt that she was expressing such compassion for my sister in law but we never received that for our own very personal losses.

I spent the next 2 hours steaming and thinking of something cutting I could write back to her.

Several hours later it occurred to me that I could send her my post from Facebook. What I had written. And that I could tell her that I know I haven\'t talked about this....because it is so difficult for me.....but this is what I have been experiencing...this is the hard time I\'ve been having.

I don\'t know if she\'ll write back or what she\'ll say.

But it just felt good even to hit \"send\" and just to be honest (without being hurtful) that yes I know i don\'t talk about this. But I do want to be supported. It is just hard for me to talk about it in short conversations in the living room when she\'s on her way in and I\'m on my way out.

So maybe what I\'ve written has been a door opener in many parts of my life. And maybe I will write more someday and find my voice and be a comfort to others as well.

Thanks again for reading. Hugs to all of you brave women.